When Life Gives You Parkinson's
Curiouscast
Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their own stories revealing the challenges and growth offered by the Parkinson’s journey. Larry is a seasoned broadcaster and the podcast is c...
PD Avengers Weekly Chat - Balancing Life and PD
The PD Avengers discuss the challenges of balancing life with Parkinson's disease, emphasizing the impact of Deep Brain Stimulation (DBS) on daily routines. Both Tim Hague and Larry Gifford highlighted the necessity of daily naps and improved sleep post-DBS, though daytime sleepiness persisted. They shared personal strategies like improv for maintaining positivity and energy. Traveling with DBS was noted as challenging, with issues like being patted down at airports. They promoted the PD Avenger
PD Avengers: What have you learned about yourself since your diagnosis?
PD Avengers co-founders Larry Gifford, Soania Mathur, and Tim Hague Sr. discussed various topics related to Parkinson's disease, including recent news and advancements in Deep Brain Stimulation therapy. They also shared personal experiences and lessons learned since being diagnosed with Parkinson's, emphasizing the importance of self-advocacy, mindfulness, and finding positivity in the face of adversity. The conversation ended with a focus on what they've learned about themselves since their dia
PD Avengers share three things to focus on in the new year
In the PD Avengers Weekly Chat titled "3 Things to Make 2025 Great!", co-founders Larry Gifford, Soania Mathur, and Tim Hague discuss three key actions to enhance the well-being of individuals with Parkinson's disease in the coming year:
Engage in Regular Exercise: Tim emphasizes the importance of consistent physical activity, citing research that shows 30 minutes of intense exercise, five days a week, can slow the progression of Parkinson's. He shares his personal routine at U-Turn Parkinson's
Choosing DBS
Supported by Abbott.Podcast Summary: Overview of DBS for Parkinson's DiseaseIn this episode, we discuss Deep Brain Stimulation (DBS), a therapy used for over 20 years to manage Parkinson's symptoms when medications aren't enough. DBS involves surgically implanting electrodes in the brain, connected to a battery pack in the chest, to improve motor symptoms and normalize brain activity.Patient Stories:
Ed McQuaid, diagnosed in 2018, had DBS in 2023. He went from taking 8-10 pills daily t
From Awareness to Action: The Final Episode
In this bittersweet finale of "When Life Gives You Parkinson's," we reflect on the incredible journey we've shared over 124 episodes. From the very first episode to this one, we've laughed, cried, and learned together. Countless guests have graced our show, sharing their stories, insights, and expertise, making each episode a treasure trove of knowledge and connection.Hosts Larry and Rebecca take a moment to express gratitude to everyone who has contributed to the success of the podcast
Dialing in DBS and Sorting Through the Data with Rune Labs CEO Brian Pepin
In the latest episode of "When Life Gives You Parkinson’s," Larry Gifford shares insights into his Deep Brain Stimulation (DBS) journey alongside his partner, Rebecca Gifford. Larry expresses excitement about the positive impact of DBS on his symptoms, noting improvements in walking, voice, and overall confidence. He recommends Dr. Jon Stamford’s new DBS DIARY for a comprehensive view of the DBS dilemma. The episode features an interview with Brian Pepin, CEO of Rune Labs, the technological inte
DBS: I Helped Surgeons Operate on my Brain
In this episode of "When Life Gives You Parkinson’s," Larry and Rebecca dive into Larry's recent Deep Brain Stimulation (DBS) surgery. It's the culmination of their DBS series, showcasing moments before and after the procedure. (Episode six of our 2023 DBS series)
Larry shares his experiences, from the anticipation of the surgery to post-surgery reflections. He describes the fears he had about the head frame and the surgical process itself, emphasizing the involvement of Nurse Nancy and Dr. Hone
DBS Pre-Op Talks: Love and Transition
Season 6, Episode 6
SHOW NOTES Oct 17, 2023
TITLE: DBS Pre-Op Talks: Love and Transition
Podcast Notes:
In the latest episode of the When Life Gives You Parkinson's podcast, hosts Larry and Rebecca Gifford discuss the upcoming Deep Brain Stimulation (DBS) surgery. The surgery is scheduled for October 24th, 2023, at UBC Hospital in Vancouver, British Columbia, Canada.
Larry and Rebecca tak
Brains and Drills: What to Expect with DBS Surgery
In this episode, Larry and his partner, Rebecca, discuss what to expect right before, during, and after DBS surgery. The surgery is scheduled for October 24th, 2023, and this episode was recorded about two weeks before the surgery.
The episode covers the pre-surgery preparations, including the need to stop medication before the surgery, and an informative description of the MRI process. Nurse Nancy, who works at British Columbia's DBS clinic, provides insights into the surgery day, which involve
Navigating Deep Brain Stimulation: The Pros, Cons, and Realities
In this episode of "When Life Gives You Parkinson's," Larry Gifford and Rebecca Gifford delve into the world of Deep Brain Stimulation (DBS), continuing their 2023 series on this treatment option. While sharing their optimism about Larry's upcoming DBS surgery, they also address the importance of discussing the risks associated with it. They present real stories from individuals who've undergone DBS, shedding light on the complexities and varied experiences associated with this treatmen
Inside Larry's DBS Journey: Meeting the Brain Surgeon
In this episode of "When Life Gives You Parkinson's," Larry and Rebecca dive into Larry's upcoming Deep Brain Stimulation (DBS) surgery. They introduce Dr. Chris Honey, the neurosurgeon who will perform the procedure the brain surgeon. Dr. Honey breaks down what to expect and the possible risks of DBS, stressing the importance of picking the right surgeon and keeping a positive mindset. After the surgery, the plan is to use the DBS device to replicate Larry's best moments on medication, with the
My Eye-Opening DBS "Off" Challenge
Hosts Larry and Rebecca Gifford are preparing for Larry's DBS surgery scheduled for October 24, 2023. During the evaluation for DBS surgery. Larry needed to completely go off meds for at least 12 hours. The medical team tests motor symptoms while OFF levodopa and then after taking a dosage and waiting forty minutes repeat the tests. Evaluators were looking for a 40% or more difference in my motor symptoms from OFF to ON. It was truly revelatory to see just how much levodopa, the medicat
WPC2023: Parkinson's Without Borders
Donate to the World Parkinson Coalition to support this and future World Parkinson Congresses. World Parkinson Congress 2023 (WPC2023) was a true testament to unity and shared vision. It saw the participation of more than 2,600 people, drawn from 73 countries, all converging under one roof with one common objective: unraveling the mysteries of Parkinson's. This assembly comprised nearly a thousand medical doctors and researchers, 450 registered nurses, therapists, and other clinicians,
Harnessing the Healing Power of Infrared Light
Larry & Rebecca Gifford dive into the growing interest and research being conducted around red light and infrared light laser therapy for Parkinson’s disease. In Hamilton, Ontario PD Avenger and care partner Lorna Dueck, a retired radio and TV host, visits Gaitway Physical Therapy. She interviews physiotherapist Orla Hares and research assistant Jenna Sykes. Intrigued, Larry tracks down the CEO of Symbyx Biome, Dr. Wayne Markman of Australia, to discuss the handheld laser being used
Biomarker Breakthrough w/ Debi Brooks CEO of The Michael J Fox Foundation
The banner headline on the homepage of the Michael J. Fox Foundation’s website reads “Breaking News: Parkinson’s Disease Biomarker Found.” It sounds exciting, but what does it really mean? Debi Brooks, CEO and cofounder of The Michael J. Fox Foundation, joins Larry Gifford for a chat about what she says is the most important finding the Foundation has discovered in its history. It is already changing the way researchers recruit for some studies. It will lead to faster diagnosis, more cu
Is Trichloroethylene an invisible cause of Parkinson’s?
Trichloroethylene (TCE). You cannot see it or smell it. It could be in the air you breath, the water you drink, and the food you eat. It is a carcinogen and is linked to clusters of cancer and Parkinson’s. In Journal of Parkinson’s Disease, Dr. Ray Dorsey at the University of Rochester and eleven colleagues have published a research article asking the question “Is Trichlorethylene an invisible cause of Parkinson’s?” The authors go on to make a convincing case.Dr. Dorsey joins the podcas
The Promise of Lithium as a Parkinson’s Disease Modifying Treatment
Lithium is more than a drug, it’s the third element on the Periodic Table of Elements. Symbol is LI. It’s lightest metal known to mankind. Lithium-ion batters are used in electric cars. Lithium is also present in vaping devices, many personal electronics such as cell phones, tablets, and laptops, E-Bikes, electric toothbrushes, tools, hoverboards, scooters, and for solar power backup storage. Its origins can be traced back to the Big Bang. For 70 years it’s successfully been used to tre
Muhammad Ali’s Parkinson’s Journey w/ May May Ali and Michael S. Okun, MD
January 17 marks the 81st anniversary of the birth of one of the greatest Parkinson’s advocates of all time, Muhammad Ali. In this episode, we learn more about the champ’s journey from his eldest daughter Maryum “May May” Ali – the stigma her father dealt with after his diagnosis, when she first noticed changes in her dad, struggles with speaking and medication, and how he improved his quality of life. In addition to exploring Ali’s Parkinson’s legacy, Dr. Michael S. Okun, the head of n
I Don’t Care Just Call It Apathy
One of the dark symptoms of Parkinson’s is apathy. Describing apathy is a bit like describing what it feels like when a dementor in the Harry Potter books kisses a character – the ability to drain happiness and hope from its victims. When a person with Parkinson’s spirals into a an apathetic state they lack motivation and lose interest in activities they used to enjoy. To experience apathy is like being in a bubble of indifference. You stop caring about yourself or other people in your
Live Inspired with John O'Leary
When John O’Leary was a nine-year-old boy, he was burned on 100% of his body. He was in his garage playing with matches and gasoline—just like he’d had seen the older boys on his block do. A fire exploded, consuming the garage, sending him flying back against the wall and turning his whole world upside down. He talks with Larry & Rebecca about how he was given 1% chance to live. Now, 36-years later, John is living an inspired life. He has two national best-selling books “On Fire” an
Being Well with Parkinson’s
Kat Hill and Nancy Peate are the authors of Being Well with a Chronic Illness: A Guide to Joy and Resilience with Your Diagnosis. In their book they offer wisdom, language, research-supported guidance and personal stories to help people with Parkinson’s and other chronic conditions navigate their wellness journey. In this episode, Rebecca talks with the authors — who also happen to be good friends — about their own experiences with Parkinson’s and how they have cultivated tools to find
What’s Your Superpower? Feat. Geoff Constable
Geoff Constable is a PD Avenger and an Ambassador for the World Parkinson Congress 2023 in Barcelona. We met at the last WPC2019 in Kyoto. Like many of us with YOPD, Geoff’s diagnosis was delayed six years as doctors tried to figure out root issue of his symptoms. In 2008, at the age of 50, he finally was able to put a name to the issues he had, Parkinson’s disease.Geoff spent his teen years sleeping on friends couches and sometimes living on the street. He earned a degree in Naval Arch
What’s New and Now in Parkinson’s
Updates on several stories we’ve shared on the podcast. Reactions to the three-minute test to diagnose Parkinson’s. The final 30km on a cross-country bike tour for Parkinson’s leaves bikers spinning their wheels. * We catch up with the Rigid Riders. Plus, Ozzy Osbourne on stage for the first time since his Parkinson’s diagnosis. *Don’t forget to push the donut button. EMAIL Larry and Rebecca: ParkinsonsPod@curiouscast.caHave questions, comments, or a story idea? We would love you to cli
A 3-minute test for a Parkinson’s diagnosis
This is a breakthrough, breaking news episode featuring Professor Perdita Barran, University of Manchester and Joy Milne, the woman who can smell Parkinson’s. Today. their latest research paper was published at 12:01am (BST) September 7, 2022. This research has led to a three-minute non-invasive test to determine a positive or negative Parkinson’s diagnosis. Clinical Research will begin within two years at University of Manchester and has the potential to be approved as a diagnostic too
I Was Clueless About Caregiving
Dave Iverson was diagnosed with Parkinson’s in 2004. He is a founding member of The Michael J Fox Foundation (MJFF) Patient Council and was the first host of the MJFF Parkinson’s Podcast. We caught up at a patient council meeting in New York City to chat about his new book “Winter Stars.” Parkinson’s runs deep in Dave’s family, but this book is not strictly about Parkinson’s. It’s about family, life choices and a bone between a mother and son. At the age of 59, having spent nearly forty
Two women with Parkinson’s, 200 years apart
SUMMARY: In the book, “Mary & Me,” author Robyn Cotton draws upon her own experiences with Parkinson’s in a fictional novel based in contemporary times and early 1800’s London, England when Dr. James Parkinson was roaming the streets and noticing a condition, he called shaky palsy. Not often does Parkinson’s play such a key role in a fictional piece of work, Robyn’s journey grounds the book in near-real experiences as she and her characters struggle with the degenerative brain disea
Spinning Wheels
Larry & Rebecca Gifford highlight two Canadians with Parkinson’s who are sparking awareness, raising money and building community by riding their bicycles across every Canadian Province over the next three months.
Jim Redmond and Steve Iseman take a break from pedaling to sit down with Larry at picnic table outside their RV on Day two of the journey when they stopped at the Capilano River RV Park in West Vancouver.
Thank you for listening. Add your voice to the show and leave a me
Down Under | A Spark, A Warrior, and World Parkinson's Day
This is part one of three of a mini-series of episodes we are calling “Down Under.” Host Larry Gifford gets you ready for World Parkinson’s Day. Learn about the new international symbol for Parkinson’s disease named “THE SPARK” and how you can use it. Where to watch the world premiere of the new documentary “The Long Road to Hope: Ending Parkinson’s Disease.” The Parkinson Unity Walk in Central Park in New York City is going to take place April 23. IF you can’t make it, you can still p
The Talk | Larry & Rebecca in Conversation – Part Three of Three
This is the final instalment of our three episode mini-series we are calling “The Talk.” Hosts Larry and Rebecca Gifford talk about how Parkinson’s can send them into a hopeless spiral – at times it feeling as if they aren’t both committed to the marriage. And then there are times when Parkinson’s brings them closer together than ever.
A difficult, intimate, deeply personal conversation about keeping connected and the importance of communication for people with Parkinson’s and care pa
The Talk | Larry & Rebecca in Conversation – Part Two of Three.
This is part two of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. In this episode, they check share the emotional toll Parkinson’s takes on each of them.How to maintain agency of your life while dealing with Parkinson’s, how apathy impacts everything and where hope is found when you feel hopeless. Thank you for listening. EMAIL US: ParkinsonsPod@CuriousCast.ca Have questions for Larry & Rebecca? Want to
The Talk | Larry & Rebecca in Conversation – Part One of Three.
This is part one of three for a mini-series of episodes we are calling “The Talk.” Hosts Larry and Rebecca Gifford are also the guests this week. They will check on how each other is doing physically and emotionally.
They will talk about personal priorities, advocacy, and how chronic disease changes and challenges the dynamics of a family. We will also get into what gives us hope. In part one, that you are about to hear – we are talking about where our life sits from a practical perspe
Deep Dive into DBS | Part Two of Two: Shake it Off
Larry & Rebecca Gifford dive deep in to deep brain stimulation (DBS). We learn about the innovative technology used for DBS from Dr. Alfonso Fasano, the chair of Neuromodulation and multi-disciplinary care at the University of Toronto and University Health Network.
Sonia Soriano-Espert from Valencia, Spain, through translator and friend Sabela Avion, shares her experience of having DBS surgery conducted by a robot. This interview first aired on ODNA PK radio in Spain. The hosts are
The DBS Journey | Part One of Two: Your Brain Controls Everything and We Can Control Your Brain
Larry & Rebecca Gifford dive deep in to deep brain stimulation (DBS). We challenge the Neuroscience perception that the brain is everything we know and do, and everything we are. We believe, more than just a brain that makes us human, empathetic, and real.
This first part prepares you for the surgery. We call it DBS 101. We will explain terminology detail the lead up to the surgery, and tell you why it matters where the lead wires are placed in your brain. We explore our personal h
The brain under seige
The first three episodes of Season 4 of When Life Gives You Parkinson’s go deep inside the brain. It has been five years since the United Nations recognized one BILLION people or one in six person’s alive today on the planet suffers from a neurological disorder, from Alzheimer and Parkinson disease, strokes, multiple sclerosis, and epilepsy to migraine, brain injuries and neuro-infections. Each year, nearly 7 million dying from neurological issues each year. Every two-and-half minutes, another p
The Brain Under Siege
The first three episodes of Season 4 of When Life Gives You Parkinson’s go deep inside the brain. It has been five years since the United Nations recognized one BILLION people or one in six person’s alive today on the planet suffers from a neurological disorder, from Alzheimer and Parkinson disease, strokes, multiple sclerosis, and epilepsy to migraine, brain injuries and neuro-infections. Each year, nearly 7 million dying from neurological issues each year. Every two-and-half minutes,
DELAYED: This pod and the WPC
We missed a few weeks of the podcast and I wanted to explain why. Turns out I can’t still do it all. I’m having to prioritize more and more on where I put my focus. This time, the podcast got short shrift. But, I figured if anyone would be understanding it’ll be my pod peeps. There are two more episodes of Season 3 of When Life Gives You Parkinson’s which will be released sometime this Summer. One on Paraquat and other toxic chemicals and one on DBS: Deep Brain Stimulation. After those episodes
NBA star Brian Grant on hard work, team work, and Parkinson’s
This episode of When Life Gives You Parkinson’s features former NBA star Brian Grant who was diagnosed with Parkinson’s disease (PD) in 2008. He spent 12 years battling for rebounds and putting points on the board playing professional basketball and the last 13 years battling Parkinson’s and putting points on the board as a PD advocate.
“You know, when I go onto court and go up against somebody who was a big name, I’d grit my teeth to try to be an animal out there,” Grant shared. But
Care Partners Advocating for Themselves
This episode of When Life Gives You Parkinson’s is all about care partners and caregivers advocating for themselves. We take our jobs very seriously and often put caring for ourselves last on our lists. Our lives and well-beings are affected on nearly every level by our Person with Parkinson’s condition, and we have our own needs, yet we still are often considered predominantly in relationship to them. How do we as care partners, caregivers and Partners in Parkinson’s advocate for equal
Parkinson’s is not witchcraft or a curse | Parkinson’s Si Buko Uganda
April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s addresses stigma of Parkinson is in Uganda. You will meet Hannington Kabugo and learn how the passion and resourcefulness of a single advocate can help drive change in the world. Hannington and his two sisters moved with their father out of their home after the village determined his Mom was a witch. They were never to return. He tells us the stories of what happened when he sneaked back to see her. Ye
Getting more wise about PD with Allan Cole
April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s Larry interviews Allan Cole from the PD Wise blog and the author of a new book Counseling Persons with Parkinson’s Disease. Allan, 53, received his diagnosis nearly five years ago. In addition to his advocacy work, he is a father of two teenaged girls, he is coming up on his 30th wedding anniversary and he is a professor and academic dean in Steve Hicks School of Social Work at the University of Texas
On the Edge of Disease-Altering Drugs and a Bio Marker
Learn more about your ad choices. Visit megaphone.fm/adchoices
Women and Parkinson’s: Hormonal cycles and pregnancy for women with YOPD
April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s is about women with Parkinson’s who are diagnosed less often, less accurately and offered treatments that are less effective often because hormonal cycles play a role and it’s a rather unexplored area of the disease.
We will hear from three women with Parkinson’s who also experienced pregnancy, giving birth and parenting with PD. All of their experiences were different, but certainly complicated by the
Red Letter, Give a Dime
In this episode of When Life Gives You Parkinson’s, I am the host of a live event with four leading experts in the Parkinson’s world. Together they wrote a book called “Ending Parkinson’s Disease” and launched a red letter campaign to the White House. It’s been one year since the book was released and it has helped to inspired the movement PD Avengers, which I co-founded. What’s new in Parkinson’s? What have they learned? What’s standing in our way of success? Listen as Dr. Ray Dorsey, Dr. Bas B
Expanding Your Healing Tools: Integrative Medicine Part 2
This episode of When Life Gives You Parkinson’s is about exploring Eastern holistic healing modalities as a complement to the pharmaceuticals relied upon by Western Medicine. Parkinson’s touches a global community, so we might as well use all the global tools to address our health and wellness. Sometimes it is a matter of having the courage to try something new.
For me, last year, that was acupuncture. I am afraid of needles, but quite enjoyed the pain relief it provide and calming, cen
All about falling: the down side of PD
Hi, it’s Larry. I’m 49 and I have Parkinson’s disease. This episode of When Life Gives You Parkinson’s is about managing falls. It is winter and where we live snow and ice and black ice and freezing rain are all hazards, which increase everyone’s chances of falling. People with Parkinson’s are more prone to slipping and stumbling, skidding and tumbling to the ground. So, we should talk about it. I didn’t consider it a topic I’d need to know much about until I get much older. I was wrong
Empowerment through the integrative medicine approach
In this episode of When Life Gives You Parkinson’s, my wife Rebecca and I discover and discuss integrative medicine with Dr. Indu Subramanian. Integrative medicine is where Western and Eastern medicines meet. Activities we all are aware of like yoga, mindfulness, acupuncture and massage are among the activities that fall into integrative medicine.
I first met Indu when she interviewed me on a webinar for PMD Alliance in September 2020. Indu is Canadian, having been born and raised in On
Advocacy, collaboration and Parkinson’s in 2021 – featuring Dr. Karen Lee and Eli Pollard
In this episode of When Life Gives You Parkinson’s, my wife Rebecca and I are talking with two leaders of Parkinson's organizations about the impact coronavirus has had on advocacy, collaboration, new programs. Karen Lee and Elizabeth “Eli” Pollard are true leaders with serious minds and senses of humor, and both are visionary when it comes to bringing the Parkinson community together with a purpose.
Dr. Karen Lee took on the role of President and CEO of Parkinson’s Canada in the middl
17 Things That Give Me Hope About Parkinson’s
In this episode of When Life Gives You Parkinson’s, Larry and Rebecca Gifford welcome 2021 by digging through a sack full of hope. Each week there seems to be another headline that signals major breakthroughs – as in bio-markers and disease altering treatments – are just around the corner for Parkinson’s. We talk to two people who confirm we are on the precipice of major changes in how we view and treat the disease. However, it is not just about the diagnosis and treatments. PD advocate
Keep Walking. Keep Laughing
In this episode of When Life Gives You Parkinson’s, you will meet Ralph and Berys Richardson who have been married 52 years. Five years ago, doctors diagnosed Ralph with Lewy Body Dementia and then Parkinson’s disease a few years later. When COVID-19 hit, Ralph’s usual exercise programs were cancelled. So, with the help of Berys and his caretaker Greg Hicks, he decided to walk up and down his driveway everyday. He set his mind to doing 30 laps. He reach his goal in 17 days. Then he set
When dopamine agonists lead to agony
In this episode of When Life Gives You Parkinson’s, what happens when the side effects of your medication are causing more harm than the disease itself? Many people with Parkinson’s are treated with dopamine agonists, which work perfectly for thousands of people, but can cause uncontrollable, destructive behaviors for others. Among the issues are compulsive shopping, hyper-sexuality, binge eating, internet addictions, and excessive gambling. Larry, Rebecca and Niki will introduce you to two peop
Even Patients Can Push Things Along
This season we are talking a lot about Parkinson’s advocacy. From advocating for yourself with your doctor to people with Parkinson’s communicating with law makers, and others who are educating, participating in research or sharing their story whether through a podcast, a blog, a book, Social Media, magazines, or one on one conversations with a friend.
In this episode of When Life Gives You Parkinson’s, host Larry Gifford introduces you to Parkinson’s advocate Christine Jeyachandran. Christine
The Doctor - Patient Partnership
In this episode of When Life Gives You Parkinson’s, listen in as Larry Gifford gets his sixth month check up with his neurologist. Larry, his wife Rebecca and co-host Niki Reitmayer discuss the importance of trust and communication in building a relationship with your neurologist and all the other members of your care team – even your partner and your friends. Plus, saying “no” to a doctor can be difficult, but it is an important option to use when you do not agree with the prescribed t
Preventing Parkinsons Disease
In this episode of When Life Gives You Parkinson’s, three of the authors of the book Ending Parkinson’s Disease explain how Parkinson’s is preventable. WLGYP’s host Larry Gifford interviewed Bas Bloem MD, PhD, Ray Dorsey MD, and Michael S. Okun MD for a Parkinson Canada webinar.
Larry, his wife Rebecca and co-host Niki Reitmayer listen, learn and react to the author’s frank discussion of Parkinson’s disease, why they believe it is preventable, who is at risk, how COVID-19 maybe triggeri
When You Know It’s Time to Fire Your Neurologist
In this episode of When Life Gives You Parkinson’s, you will learn when and how to switch neurologists and what doctor’s find annoying about you.
It may be hard to believe, but doctors do not know everything about treating Parkinson’s disease. From ridiculous diagnosis stories, tragic treatment options, lack of empathy, the God complex and life altering misdiagnosis, many people with Parkinson’s have been through wringer and ultimately fired their neurologist.
The doctor-patient relat
Back to the beginning
In this premiere episode of season three of the podcast, my wife Rebecca, co-host Niki Reitmayer and I discuss what life it like with Parkinson’s three years after diagnosis and what impact has COVID-19 had on us and others with PD.
Communication came up as a relatively new and big issue in the Gifford home. For 20 years, our instinctive interactions were a fun and easy part of our relationship. Now I take things literal when Rebecca is being figurative, she has to repeat herself over a
Not just “care givers”, we are Partners in Parkinson’s
In this episode of When Life Gives You Parkinson’s, my wife and partner in Parkinson’s, Rebecca Gifford, and I explore the important role caretakers play in lives of people with Parkinson’s. We visit with people we met through season two to discuss the balance between being a spouse and a caregiver; we wrestle with what to call these important people and wonder why the medical and scientific communities do not listen to them more closely and tap them for real knowledge about living with
ESPN Founder Bill Rasmussen
In this episode of When Life Gives You Parkinson’s, I interviewed the founder of ESPN, Bill Rasmussen, who publicly announced his Parkinson’s in 2019. Bill was diagnosed six years ago, he is still active and still travels around the country giving talks to students and business leaders. At first, he says, he tried to hide his symptoms during his speeches.
“My left hand is the one that has the biggest twitch, so to speak. I thought I'd keep it behind the podium or this or that, and after
Health and Technology
In this episode of When Life Gives You Parkinson's, I explore how the collision of health, technology and innovation in the private sector is revolutionizing approaches to measuring brain activity and treat brain related issues from Parkinson’s to major brain injuries and concussions.
A major part of having Parkinson's disease is finding out what matches you in terms of diet, exercise, pharmaceuticals, therapies and relationships so you can manage your symptoms and maintain the best qua
Parkinson’s, Parenting, and the Coronavirus Pandemic
In this episode of When Life Gives You Parkinson’s, my wife and partner in Parkinson’s, Rebecca Gifford and I share how COVID-19 is affecting our family. From managing stress and PD symptoms to becoming accustomed to living well during a time of uncertainty, we are all learning many lessons. Here are five of the lessons that Rebecca and I have learned thus far:
My Parkinson’s symptoms are less intense when I work from home compared to when I go to the office. This is a revelation that
From Rock Bottom to American Ninja Warrior
In this special Parkinson’s Awareness Month episode of When Life Gives You Parkinson’s, I chat with Jimmy Choi. Jimmy was diagnosed with Parkinson’s seventeen years ago. He ignored it for eight years. He took his pills every day, but he didn’t talk about it, he ignored it, he hid it and lied about it to friends and family.
He was quite certain himself that the Parkinson’s diagnosis was probably wrong. “I convinced myself that one day I'm going to wake up and my doctor is going to tell m
The Never-ending Hunt For a Parkinson's Cure
In this special Parkinson’s Awareness Month episode of When Life Gives You Parkinson’s, I chat with leaders of three Parkinson’s organizations about the never-ending hunt for a cure. The world has been five years away from a cure for Parkinson’s for the last thirty years or so. That sentiment is an update from when Tom Isaacs uttered a similar phrase in the early 2000’s. Isaacs had Parkinson’s and was a fierce advocate for those living with the disease. He co-founded Cure Parkinson’s Trust in En
Escaping the darkness of depression with Heather Kennedy
In this special Parkinson’s Awareness Month episode of When Life Gives You Parkinson’s, I chat with Heather Kennedy. Heather, recently named an Ambassador to the World Parkinson Congress 2022, is a fierce Parkinson’s advocate from San Francisco. Heather tackles some tough topics; being a woman with PD, dating with bladder urgency, and depression.
“Depression? It’s tricky,” she says. “It creeps up, it lies to you, it tells you that you’re nothing, that you’re useless, and that there are
A conversation with Dave Clark on Parkinson’s, broadcasting, and life
In this special Parkinson’s Awareness Month episode of When Life Gives You Parkinson’s, I chat with Dave Clark. Dave is a television presenter for SKY TV Sports from Leeds, England. He’s best known for anchoring darts and boxing coverage. His positivity is infectious. He was diagnosed with Parkinson’s in early 2011, but nearly a decade on he’s still broadcasting, has a great attitude, is raising tons of money and attention for the cause.
Later this year, he will walk the length of Hadri
Ending Parkinsons
In this episode of When Life Gives You Parkinson’s, I talk with Professor of Neurology Ray Dorsey, MD from University of Rochester and the CEO of the Michael J. Fox Foundation Todd Sherer, PhD. These are two of the fourth authors behind a new book called, “Ending Parkinson’s Disease, a prescription for action.”
Dorsey, Sherer and co-authors Michael S. Okun, MD at University of Florida and Bastiaan Bloem, MD, PhD of the Netherlands, each approach Parkinson’s disease from a specific point
This might be the closest thing to a cure for Parkinson’s
In this episode of When Life Gives You Parkinson’s, despite some setbacks there is still an appetite to trial a treatment for Parkinson’s that many believe is the antidote. GDNF or Glial cell line derived neurotrophic factor are naturally occurring and are vital for normal functioning of the brain.But, when GDNF is delivered directly to the brain, for some people, it is as if they’ve never had Parkinson’s.
The phase II GDNF trial at University of Bristol, seemingly, was made possible th
Stem Cells, Parkinson's and Bad Batch
From prayers and real promise to being preyed upon, this is the real deal about stem cell therapy and Parkinson’s disease. In this episode we explore stem cell therapy for Parkinson’s disease.
The promise of stem cells is exciting and there's amazing research underway.
Later this year, the first U.S. human trials for stem cell therapy for Parkinson’s will begin in New York. This could open up a potential path for new treatments and Dr. Lorenz Studer has spent the last 22 years perfecting the t
How Writing Can Help People With Parkinson’s
This week on the podcast, we’re talking about writing as a life skill. Learning to access your own inherent creativity can be a powerful tool for any of us dealing with challenge and change. For folks with Parkinson’s in their lives, it can offer both physical and emotional benefits.
Science agrees! Studies and reputable sources tell us that writing and other forms of creative expression can reduce stress, help with sleep, improve cognition, improve your mood, help manage symptoms of depression
How did I get Parkinson’s?
What are the different possible triggers for how people get Parkinson’s? Find out in this episode as I try to narrow down how the degenerative brain disorder was unleashed on me. After Niki and I chat about the “how,” my wife ,Rebecca and I begin to explore the “why?”
If you have Parkinson’s, you may want to play along at home while you listen. Here’s a handy check list to see what factors potentially triggered your onset of PD.
Check ALL that apply:
I am male.
I am older than 60 year
Shake With Me: One Family’s PD Journey
In this episode of When Life Gives You Parkinson’s, I talk with filmmaker Zack Grant, the driving force behind the Parkinson’s documentary, “Shake with Me.” The thirty-minute film was originally intended to document how Parkinson’s impacted and inspired Zack’s mom, Debra Magid, to return to her fine art roots and begin to paint bold, colorful, big-eyed, portraits. It turned into an intimate, authentic time capsule, capturing moments and conversations as a family wrestles with a Parkinson’s diagn
Misdiagnosis
I will introduce you to Jeanette and Barry Pynn. They are friends of Rebecca and mine that just went through a gut-wrenching couple of years dealing with a misdiagnosis.
Jeanette was a runner for her whole life. After decades of raising kids, a great marriage, and dreams of traveling and enjoying the final decades of life together, Jeanette’s gait changed. “I couldn’t flatten my foot out during a run,” she says. Doctors treated her foot issues for years through orthotics and creams. Three years
The Parkinson’s Legacy of Muhammad Ali
In this episode of When Life Gives You Parkinson’s, we explored the Parkinson’s legacy of Muhammad Ali. He was a boxer, a philanthropist, a Civil Rights leader, a dedicated Muslim and an advocate for Parkinson’s.
In retracing the onset of Ali’s Parkinson’s disease, it is evident he was aware, his doctor was aware and the public was aware that something was happening even as his boxing career was continuing on. The slowness, rigidity, and slurred speech all can be traced back to the mid-70s. Ali
A health update from Larry
Hey folks, its Larry. We need to chat. A few Thursday’s ago, I was sitting in my office having a meeting and suddenly my nose begins to bleed. Weird. I grab some tissues. I’ve had bloody noses before and they stop in a few minutes. This was a gusher and it wasn’t stopping. 40 minutes into the bloody nose we called 9-1-1. Medics came, put a plastic clamp on my nose and took me to St. Paul’s Hospital. After a few hours the bleeding stopped. The ER doc asked a few questions and sent me hom
They Say Laughter is the Best Medicine
In this episode of When Life Gives You Parkinson’s, I put the old adage “laughter is the best medicine” to the test. I go through improvisational comedy training and perform live on stage for the first time in nearly thirty years. Plus, I connect with four people who live with Parkinson’s; Glenn Lurie, Kitty Fitton, Phil “Badger” Smith and Paul Mayhew-Archer. They all have turned to stand-up comedy after their PD diagnosis.
Paul Mayhew-Archer, star of the one-man show “Incurable Optimis
Parkinson’s is a family affair | 7
In this episode, we discuss what it is like to a get a diagnosis of Parkinson’s in the prime of your life when you are happily married with four kids and had been anticipating a return to full time work after a tour of duty has a full time Mom.
On her website, www.kittyfitton.com , she says, “I am a comedian, Aviation fiend, Air-Scout leader, mother, wife, friend, and I have Parkinson’s Disease. It’s the last thing that’s the real kick in the guts, but also the thing that has helped to
Extra Dosage | Robin Williams
This podcast and these show notes talk about suicide. If you are thinking about taking your own life or are worried about a friend or a loved one, call your suicide prevention hotline. It is available 24 hours a day, seven days a week in Canada. Call 1-833-456-4566. In the United States, it's 1-800-273-8255. Please ask for help. Reach out and talk to somebody. Your life is worth living.
A full list of suicide hotlines from around the world can be found here.
This is a special bonus episode of
Parkinson’s is an Extreme Challenge | 6
In this episode of When Life Gives You Parkinson’s, Larry Gifford talks with three friends with Parkinson’s who set out to test the physical, mental, emotional, and spiritual limits of the human body after diagnosis. What they discovered was that challenges in life, no matter how extreme, are easier and more rewarding when you build a community of support around you and allow yourself to be vulnerable enough to ask for help.
For many people with Young Onset Parkinson’s Disease (YOPD), t
Extra Dosage | Jillian’s Gym
This is a special bonus episode of the When Life Gives You Parkinson’s podcast called “Extra Dosage.” Full episodes of Season 2 are available every other Wednesday.
In this episode of When Life Gives You Parkinson’s I visit Jillian Carson, 59, at her new Parkinson’s Wellness Centre in Victoria, British Columbia.
It’s a dream that I thought would never happen.” Carson, a retired physiotherapist and nine-years into her Parkinson’s diagnosis, knows how important the centre is for people,
Deep Brain Stimulation, is it worth it? | 5
In this episode of When Life Gives You Parkinson’s I talk with three friends about Deep Brain Stimulation. Becca Miller is contemplating it, David Sangster just had it and Jim Smerdon had it five years ago.
“You hear everything,” said Jim Smerdon of Vancouver, B.C. when I asked what he heard when doctors drilled a hole through his skull and into his brain. “It was the clearest memory I’ve ever had of anything of my life.”
Jim was awake for the first five hours of Deep Brain Stimulation
Extra Dosage 4: A visit with my neurologist
This is a special bonus episode of the When Life Gives You Parkinson’s podcast which we are calling “Extra Dosage.” Full episodes of Season 2 are available every other Wednesday.
Every six months, I visit Dr. Jonathon Squires at UBC’s Djavad Mowafaghian Centre for Brain Health. He is my neurologist and movement disorder specialist. Last week, my wife Rebecca and I sat down with him after our examination and interviewed him for the podcast. We talk about my symptom progression, my medic
The Smell of Parkinson's | 4
When Joy was 16-years old, she fell in love with Leslie. Back then, he smelled good. “He had a wonderful male musk smell,” she says. Dr. and Mrs. Leslie and Joy Milne were later married. Les became a consultant anesthetist and she was a nurse practitioner.
Sixteen years later, his body odor changed – for the worse. He smelled off, overly musky and unpleasant. Joy even nudged him to wash more. Twelve years after that, he was diagnosed with Parkinson’s disease. At their first support group meetin
Extra Dosage | Empowering People with Parkinson’s
This is a special bonus episode of the When Life Gives You Parkinson’s podcast which we are calling “Extra Dosage.” Full episodes of Season 2 are available every other Wednesday.
At the first in a series of events called “Parkinson’s IQ + You” presented by The Michael J. Fox Foundation, hundreds of people gathered in Atlanta to learn how to take control of their health care, build their care team and advocate for themselves. Additionally, leading scientists, researchers and neurologists shared
The Elephant in the Bedroom | 3
Guest writer Rebecca Gifford, the wife of Larry Gifford
In this episode of When Life Gives You Parkinson’s, Larry and I explore how we keep the magic alive in the bedroom and beyond when there is always an elephant (a.k.a Parkinson’s disease) in there with us eating peanuts and taking up a lot of space.
Your bed. It’s your private space. It’s restful, probably even peaceful sometimes, and hopefully happy. It can be a safe place to feel and even grieve. If you’re fortunate enough to have someon
Extra Dosage | Parkinson Superwalk
After my diagnosis with Parkinson’s disease, my first call was to the Parkinson Society of British Columbia. They were quick to offer information on support groups and mailed a packet of brochures, handouts and relevant information that immediately made me feel less anxious and more informed. That is why each year my family raises money and walks in the Parkinson SuperWalk in Vancouver. This year we had a team of 12 walkers on our “When Life Gives You Parkinson’s” team and my 10-year-old son Hen
Slave to the Pill | 2
Around the world there continues to be a worldwide cry for help in the Parkinson’s community. Since October 2018, there has been a global shortage of SINEMET®®®. This is the brand name version of levodopa-carbidopa, the gold-standard drug, used to treat Parkinson’s disease, which Merck packages and sells. It started with a supply shortage, which lead to a third-party manufacturer change. Anytime you change production of pharmaceuticals, the manufacturer has to re-ratify the entire produ
Extra Dosage | Fundraising is a Family Affair
This is a special bonus episode of the When Life Gives You Parkinson’s podcast which we are calling “Extra Dosage.” Full episodes of Season 2 are available every other Wednesday.
This Extra Dosage is about a young man and his family, using their passion for running, to help raise funds for Parkinson’s research.
Anthony Kerkman, 32, lives in Pickerington, Ohio in an idyllic neighbourhood with sprawling manicured lawns, multi-tiered back decks, and driveways that are three cars wide.
In Septe
Still Me, But Not The Same | 1
A year ago, I started the podcast When Life Gives You Parkinson’s. I had been diagnosed a year earlier, on August 17, 2017, with Young Onset Parkinson’s Disease at the age of 45. I can feel the disease progressing.
I update my co-host Niki Reitmayer on my symptoms. In the last six months, I continue to have trouble getting a good night’s sleep, I’m now battling day time fatigue. I have long stretches of numbness and pain from neuropathy in my feet, increased body pains, anxiety, hot flashes, an
Trailer - Season 2
Larry Gifford is a 47 years old husband and dad with a great career and a degenerative brain disorder without a cure. Join him, his wife Rebecca and their son Henry as they share with you, and co-host Niki Reitmayer, the journey into what it’s like to live and work with the disease. Season 2 launches Wednesday September 4th.
Learn more about your ad choices. Visit megaphone.fm/adchoices
Extra Dosage: Dyskinesia
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes of Season 2 of the podcast will be released every other Wednesday beginning in September 2019.
If you were to imagine Michael J. Fox in your mind right now. You probably are picturing the guy from Back to the Future or The Good Wife. Think about when you’ve seen him interviewed on TVnews programs or when he testified before congress. Those uncontrolled, involuntary mov
World Parkinson Congress Day 4 - WPC2019 | 14
I am in Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event, which is held every three years and it opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.
The WPC wrapped up the fourth and final day by announcing Barcelona, Spain as the next destination for the World Parkinson Congress in 2022. In this episode of the pod, my wife Rebecca and I sit down with Amazing Race Canada
World Parkinson Congress Day 3 - WPC2019 | 13
I am in Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event, which is held every three years and it opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.
Parkinson’s has often been described as an old, white man’s disease. The truth is Parkinson’s is not that exclusive of a club. In fact, three things are very clear in Kyoto as the WPC wraps up day three: young people, women and
World Parkinson Congress Day 2 - WPC2019 | 12
I am in Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event, which is held every three years and it opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.
Joy Milne of Perth, Scotland fell in love with Les Milne when they were 16 years old. They married, had three kids, he was a doctor and she was a nurse. They lived a good life. Sometime in their 30’s, Joy noticed her husband starte
World Parkinson Congress Day 1 - WPC2019 | 11
I am in Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event, which is held every three years and it opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.
Opening ceremonies were held on June 4, 2019 at the Kyoto International Conference Center. More than 2,600 registrants are in attendance from 65 different countries. The keynote of the opening ceremonies was reserved for the wi
It’s Parkinson Diseases with an “s” WPC2019 | 10
In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives You Parkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.
Etienne Hirsch is Director of
Tips for Thriving with Young Onset Parkinson’s Disease - WPC2019 | 9
In June, I will be traveling to Kyoto, Japan for the 5th World Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.
At the congress, there will be many se
The Best Diet for People with Parkinson’s- WPC2019 | 8
In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.
Since my diagnosis, the most unsolicite
Navigating Japanese Language and Culture - WPC2019 | 7
In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.
Traveling to a foreign country can be d
Let’s Talk About Sex and PD - WPC2019 | 6
In this episode I speak with Gila Bronner, founder and former Director of the Sex Therapy Service at Sheba Medical Center in Israel. She is also a sex therapist at the Movement Disorders Institute of the medical center. She tells me Neurologists, nurses, and other health professionals, in general, are not taught about sexual issues patients may have, where to refer them when issues arise, or how to talk to patients about it.
Bronner has proven there is an association between Parkinson’s and sex
World Parkinson's Day
In this special episode of When Life Gives You Parkinson’s, the Parkinson’s community from around the world come together to share what they believe you should know about this disease. I also interview Matt Eagles. He was diagnosed with Parkinson’s when he was 8-years-old. He just helped to create and launch a new initiative called “Parky Life.”
Follow me, Larry Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Follow Co-host and Producer Ni
Sharing stories and searching for sleep - WPC2019 | 5
In this episode, I talk with Dr. Aleksander Videnovic, a neurologist specializing is movement disorders and sleep medicine at Massachusetts General Hospital and Harvard Medical School. Dr. Videnovic will be speaking at WPC and hosting a roundtable, both of which will focus on Tips and Tricks to Managing Sleep Disorders in Parkinson’s. This link will take you to the full program schedule. The first tip he shares is to report poor sleep to your neurologist and general practitioner. He says sleep d
The Plight of Parkinson's on Super Awesome Science Show
Super Awesome Science Show (SASS) talks with Larry Gifford about his journey with Parkinson's and find out how he manages to cope both physically and emotionally. His story is both compelling and also inspiring and will reveal why his podcast has been designated at one of Apple Podcast’s best of 2018.
In our SASS class, we’re going to explore the efforts to find answers to help those with Parkinson’s Disease. We speak with Rachel Dolhun, the Vice-President of Medical Communications with the M
Keep Calm and Research On - WPC2019 | 4
David Sangster is an Ambassador for World Parkinson Congress. On April 3, 2019 David is having Deep Brain Stimulation (DBS) surgery. It’s a treatment used for late-stage Parkinson’s disease that involves surgically implanting electrodes into the brain. The electrodes deliver small electric pulses which help reduce slow movement, tremor and stiffness. David was diagnosed in 2011 and lives with severe tremoring and twitching, dyskinesia, rigidity and more. He chatted with me on the podcast a coup
Is Parkinson’s a genetic condition? WPC2019 | 3
One of the exciting areas of research as it pertains to understanding Parkinson’s disease is in genetics.
Dr. Matt Farrer is a Geneticist at the Djavad Mowafaghian Centre for Brain Health. In 2004, he found the first genetic connection to Parkinson’s, LRRK2, and his team has sincee identified about dozen others. Dr. Farrer is the first to admit Parkinson’s is not a genetic condition, but as with everything biological there is a genetic component, “The genetic component in Parkinson’s is 27%. Th
Positive Impacts of Parkinson’s. WPC2019 | 2
After he was diagnosed with Parkinson’s, Tim Hague Sr. won the first season of “The Amazing Race Canada” and wrote a book called Perseverance: The Seven Skills You Need to Survive, Thrive and Accomplish More Than You Ever Imagined. In this episode, Tim and I chat about diagnosis, acceptance, finding balance, asking for help, building a community and why it is important for people with Parkinson’s to have a mindset of an athlete.
Then we talk to Elaine Book, a social worker at the Pacific Parkin
Hello. Konnichiwa. WPC2019 | 1
In June, I will be traveling to Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease. Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives You Parkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.
In this episode, Jill Ames-Carson
Finding Hope in Parkinson’s | 12
I’m a fairly hopeful guy. Sure, I have dark moments as we all do but, hope wins out more often than not. You might be wondering how I can have hope or be hopeful while dealing with an incurable, progressive brain disease like Parkinson’s. It’s a fair question. I don’t know that I have the answers, but in this episode I go about searching for a better understanding of the role that hope plays in the Parkinson’s community. What I discover is that hope is the one driving force that binds us all tog
Extra Dosage: Travelling and Catching Up With Family
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
I was diagnosed with Parkinson’s in August 2017. I haven’t seen
Parkinson’s and the Caregiver’s Journey | 11
In this episode of When Life Gives You Parkinson’s we explore the role of the caregiver. Seeing as I’m a person with Parkinson’s and not a caregiver, my caregiver and wife Rebecca is featured prominently along with my co-host Niki Reitmayer and other caregivers Noel MacDonald and John Parkhurst. At the end of the episode, I chime in with a quick interview with Dr. Robert Duff about what caregivers need to do to make sure they’re taking care of themselves. At the end of the episode, Niki mentions
Extra Dosage | Peace of mind: Insights from a neuropsychologist
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
Parkinson’s doesn’t necessarily lead to cognitive impairment,
Parkinson’s Doesn’t Have to be a Career Killer | 10
In this episode, Niki and I talk to my colleagues and bosses about how their adjusting to my PD diagnosis, get advice from my neurologist Dr. Jonathon Squires, Neuropsychologist Dr. Robert Duff, and employment lawyer Lior Samfiru. I also chat with Jim Redmond about being a teacher with PD and Jonny Acheson about adjustments he’s had to make as an emergency room doctor who was diagnosed with Parkinson’s.
Follow me, Larry Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsP
Extra Dosage | Hope, Fear, Frustration and Levodopa
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
One of the main intentions behind this podcast was to demysti
Fatherhood and Parkinson’s | 9
In this episode, you will meet my 9-year old son Henry, hear his infectious laugh and find out the one burning question he has about Parkinson’s. I think Henry might just want a normal Dad, not one with Parkinson's , my co-host Niki Reitmayer and my wife Rebecca try to convince me otherwise.
On Saturdays, Henry and I go on adventures. We hang out, run errands, laugh, talk, and just spend time together. Father-son time means even more for me since my Parkinson’s diagnosis. I don’t always have t
Extra Dosage | Happy New Year!
Learn more about your ad choices. Visit megaphone.fm/adchoices
Extra Dosage | Christmas Greetings
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
‘Twas the night before Christmas and all through the ho
The Search for a Cure Starts With Fundraising | 8
In this episode of When Life Gives You Parkinson’s, I talk to people behind several Parkinson’s fundraisers, learn about their experiences with the disease and meet the researchers who benefit from the funds raised. I also let you follow me into Dr. Farrer’s lab as I donate my DNA.
Follow me, Larry Gifford
Twitter: @ParkinsonsPod
Facebook: Facebook.com/ParkinsonsPod
Instagram: @parkinsonspod
Follow Co-host and Producer Niki Reitmeyer
Twitter: @Niki_Reitmayer
Thank you to:
Emily Chambers
Extra Dosage | Understanding the Gut-Brain Connection
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
The appendix. Until November 1, 2018, I didn’t know it served a
Exercise is a Real Prescription for Parkinson’s | 7
I have never been very athletic. I have never been excited by thinking about or participating in exercise. The idea of a daily workout, gym memberships, exercise classes or scheduled physical activity of any kind has always been something other people do.
In August 2017, my neurologist Dr. Jonathon Squires at the Djavad Mowafaghian Centre for Brain Healthat UBC gave me a prescription for levodopa-carbidopa and a serious recommendation to exercise.
Dr. Squires told me, “The only thing we know
Extra Dosage | Puppies and Parkinson’s
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
It’s been nearly six years since our family lost our beloved be
Popping Pills, Swapping Stories – Inside a Parkinson’s support group | 6
It’s hard to admit it when you need help. It’s even harder to make the phone call, ask questions, commit to showing up, walk into a room full of strangers and share things that still remain secret to the closest people in your life.
I’d never been in a support group before I was diagnosed with Parkinson’s. I didn’t know what to expect. I wondered how my Parkinson’s would measure up and if I was too young, too healthy, or too whatever to be accepted by those who bravely showed up for these meeti
Extra Dosage | Lights! Camera! Action! Parkinson’s!
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
I took piano lessons in college. I really enjoy stumblin
Shaking the Stigma of Depression and Anxiety | 5
Since my diagnosis, I’ve experienced panic attacks, anxious days of feeling inadequate and stretches of melancholy and mourning my life before Parkinson’s. In this episode of the When Life Gives You Parkinson’s podcast we explore anxiety and depression as symptoms of Parkinson’s disease and how people are dealing with these and other hidden symptoms of Parkinson’s.
“I was afraid the building would collapse and I wouldn’t be able to get help.” Hilary Vanderliek,our guest this week, lists anxiety
Extra Dosage | I’m the World’s Leading Expert in My Parkinson’s
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
I get asked a lot questions about Parkinson’s disease. Online,
The Search for Sound Sleep: A Virgin Voyage with Cannabis Oil | 4
One of the more common symptoms for people with Parkinson’s is trouble sleeping. Some of us can’t get to sleep, some can’t stay asleep, while others are awaken by tremors, painful dystonia cramping or realistic nightmares.
I can’t stay asleep.
My sleeping journal is more of an awakening journal. One day it reads “up at 3a,” the next “up at 1a,” followed by “up at 3a, up at 3:30a, and up at 4:20a.”
I’ve tried Melatonin, Magnesium Glycinate, light therapy, aromatherapy, silence, music, medit
Extra Dosage | A check-up with my doctor and a check-in with my siblings
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
Every six months I go to the neurologist. Each time, he runs
Disease Guy, getting recast in your life story, and other things you can't put on your LinkedIn | 3
I wish I didn’t have Parkinson’s. You wish I didn’t have Parkinson’s. In fact, as far as I can discern no one is really happy about it.
My Parkinson’s is inconvenient and uncomfortable for everyone involved. That uncomfortableness has led me to apologize for having it. I have moments nearly everyday when I try to make people feel better about my diagnosis and symptoms. (Frankly, I always thought it was supposed to be the other way around.)
But, I suppose I shouldn’t be surprised. We al
Extra Dosage | Love and Strength Through Adversity
I love my wife. Rebecca and I just celebrated out 19th wedding anniversary. Last year, we were both thrown for a 20-yard loss when I was diagnosed with Parkinson’s disease. But a year later, we’re marching forward and trying to make the most of each moment of every day.
Rebecca keeps me positive, motivated, grounded and focused on the present moment. She’s full of strength, love and wisdom. What I wasn’t as conscious of was how much the disease has already changed the way I am around the home.
Sharing the news, saying I love you, and "The Larry Filter" | 2
On April 4, 2017 I texted my brothers and sister. It read, “Hi all... news of a sort from up north. For some time now, I've been experiencing issues on the side of my body leading to foot dragging/clomping, favouring my left hand over right for many tasks, slurred speech at times... life threatening issues have been eliminated. Today I went to the MS clinic for tests. MS is very unlikely, but it appears I have something in the Parkinson's family. I've been referred to a specialist, will be getti
Extra Dosage - What’s Up Doc? Larry talks to his Neurologist
This is a special bonus episode of When Life Gives You Parkinson’s which we are calling “Extra Dosage.” Full episodes will be release every other Wednesday. In between, Niki and I will share new information, original interviews and extra material that provide more context to topics raised in the previous episodes of the podcast. We’ll also answer your questions. Feel free to write us with questions at parkinsonspod@curiouscast.ca.
From the time my hand started to tremor to the time of my Parki
The Diagnosis: constant companion & frenemy | 1
My name is Larry Gifford. I am 46 and navigating life with a degenerative brain disease, which has no cure. I was diagnosed with Parkinson’s disease in August 2017 after years of collecting what I thought were disconnected symptoms. I shuffled when I walked, I lost my sense of smell, and eventually it was tremors that scared me enough to seek help.
On this week’s episode, my co-host Niki Reitmayer, and I explore my diagnosis, the symptoms, the drugs, and the emotions. I take you into my home to
Welcome
I'm Larry Gifford, I have Parkinson's disease. I'm one of 10 million people diagnosed by a disease people know very little about, so, I will be sharing my personal journey into what it’s like to live and work with Parkinson’s disease as a 40-something husband and father with a career.
Podcast will be released in Sept. but please subscribe now so you don't miss a single episode.
Learn more about your ad choices. Visit megaphone.fm/adchoices