Discovering Dementia
Penny Bell
How one person's dementia story led to a journey of discovery. A podcast with Penny Bell. Hosted on Acast. See acast.com/privacy for more information.
S3 EP2 Dementia and Loss
The Alzheimer’s Society’s latest campaign in the UK is called The Long Goodbye.It centres around the potential feelings of grief and loss that it says both carers and those living with dementia can feel through the course of the disease.Penny explores what this means and talks to carers Ame Chauhan and Candy Morris to hear their stories. She also speaks to Marion Child from the Alzheimer’s Society to find out why the campaign was launched.CONTENT WARNING: This episode contains conversations abou
S3 EP1 Manny's Samosa Saturday for Dementia UK
Fundraiser extraordinaire Manny Singh Kang is a Volunteer Ambassador for Dementia UK.He's also a Wolverhampton Wanderers football fan who launched and now runs a popular samosa stand at home games, through which he's raised thousands for charities. As you'll hear, he's also inspired many people along the way.The Samosa Saturday event featured here raised an incredible £6567.94 for Dementia UK.Links for Manny:To donate - https://www.justgiving.com/fundraising/mkangInstagramX (Twitter)FacebookDeme
Coming soon: Trailer for Series 3
Discovering Dementia is back for Series 3. Penny Bell gives an update on her plans to share more dementia stories with you.This award-winning podcast began when Penny's mum was diagnosed with dementia. They have been documenting their journey together and sharing what they discover in the hope that it would help others. This series will be a little different for Penny. Her mum's dementia has progressed so she is not able to be as much a part of the recordings as before. But the stories continue.
Memory Walk Mini Series 2 - Charlotte Murray, Dementia Adviser
This Autumn, thousands of people are signing up for free to do an Alzheimer's Society Memory Walk. The sponsored walks raise money which will go towards supporting those affected by dementia.
But who are the people behind that support?
Dementia Adviser, Charlotte Murray, tell us about her work for Alzheimer's Society and explains what she does in her role.
The Memory Walk brings together people who understand the impact of dementia, mixing the buzz of the crowd along with quiet moments of rememb
Memory Walk Mini Series 1 - Helen's Story
In the first episode of this mini series, Helen Pike generously shares her story, talking about caring for her husband Geoff, who has a form of dementia called Primary Progressive Aphasia.
She also shares her experience of Memory Walk, which she and Geoff did together last year.
Memory Walk is a series of sponsored walks held in September and October across the UK by the Alzheimer's Society. It's free to sign up and open to all.
The events bring together people who understand the impact of de
Memory Walk Mini Series 3 - Kelly Inwood, Alzheimer's Society Regional Manager
In her role at Alzheimer's Society, Kelly Inwood manages a team of people who work directly with those affected by dementia. She sees on a daily basis the importance of the help the Society can offer.
That is why she supports the Memory Walk, a series of 24 sponsored walks across the country, aimed to raise funds for research, services and to give hope to people living with dementia now.
To find out more, go to www.memorywalk.org.uk
Alzheimer's Society also runs a support line. If you are affect
Mini Series 5 - Brian's Story
In the last of this mini series of seasonal interviews, Brian Gamble, a Volunteer Ambassador for Dementia UK, talks about how important it is to share as much information as possible on dementia, particularly on things that can affect finances, from the very start, as soon as a diagnosis is made.
He also shares some of the things that worked for him and his late wife when it came to celebrating Christmas.
CONTENT WARNING: This episode contains discussion about dying and the death of a loved one.
Mini Series 4 - Maureen's Story
In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.
Maureen Winfield has first hand experience of dementia, after spending many years caring for her late husband, Michael.
She generously shares what she has learnt and how she has approached Christmas. She also talks about her role as a Volunteer Ambassador for Dementia UK, as well as her love of crafting.
With original mus
Mini Series 3 Adria Thompson - Be Light Care - Online practical tips for dementia care
In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.
Caring for someone living with dementia can mean you sometimes find yourself in situations where you’re not sure of what to say, or how best to respond. How you react can make all the difference.
Adria Thompson, from Be Light Care, is a speech language pathologist from the USA who provides regular content on social media pla
Mini Series 1 Rachael Webb - Admiral Nurse at Dementia UK
In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.
Dementia UK is a specialist dementia nurse charity, providing support to families affected by all forms of dementia. Their nurses are known as Admiral Nurses.
Rachael Webb works as an Admiral Nurse and joins Penny to talk about her role, including her work on the dementia helpline, her expertise in Lewy body dementia and her
Mini Series 2 Sue Hinds - Dementia Carers Count
In this mini series of seasonal interviews, we hear from dementia organisations and others with their own stories and tips on how best to manage celebrations like Christmas.
Sue Hinds is Head of Services at Dementia Carers Count, a national charity that supports family and friends looking after someone with dementia. It provides short courses, telephone support and lots of information online that can help unpaid carers in their caring role and to look after themselves whilst they do this.
To cal
Dementia Action Week - Whistle Stop Tour of Discovering Dementia
What is Discovering Dementia and how did it all start?
To mark Dementia Action Week, Penny outlines the origins of the podcast and why she started recording. After two series, she and her mum have met so many people who have generously given their time to share their own experiences of dementia. One of those is Peter Berry, who’s fundraising efforts and great positivity have been an inspiration.
Vote for Discovering Dementia as your Listeners' Choice at the British Podcast Awards: https://www.
Season 2 Episode 9 Dementia Specialist Admiral Nurse Victoria Lyons from Dementia UK
Victoria Lyons is Senior Consultant Admiral Nurse with Dementia UK, which provides specialist dementia support for families through the Admiral Nurse service.
They give one to one support, guidance and practical solutions with nurses continually trained, developed and supported by Dementia UK.
This year has been one of its most challenging, with the coronavirus pandemic. Victoria discusses some of the difficulties and offers tips and guidance on how to cope.
Look for more information on the
Season 2 Episode 8 Slow Puncture: New book on living with dementia by Peter Berry and Deb Bunt
Season 2 Episode 8 Slow Puncture: New book on living with dementia by Peter Berry and Deb Bunt by Penny Bell
Season 2 Episode 7 Dave Pickering: Documenting His Dad's Life Story and Dementia
Season 2 Episode 7 Dave Pickering: Documenting His Dad's Life Story and Dementia by Penny Bell
Season 2 Episode 6 Julia Hailes' Story - Dementia, Care Homes and COVID-19
General content note for this episode: suicide, assisted dying
Julia Hailes is a sustainability pioneer who started her career in the 80s. She has had a tremendously close relationship with her mum for the whole of her life – as a mother, friend and confidant.
Her mum’s subsequent diagnosis of dementia has had a huge effect. Julia has navigated these difficult years with her whole family and in particular, her sister, Amanda Campbell, who has been incredibly supportive. They have really appre
Season 2 Episode 5 Debbie’s Story – Supporting and Caring for Mum living with Dementia
Debbie shares her experiences on caring for her mum, Lily, who lives with dementia.
A perfect example of how one story leads to the next, Penny met Lily whilst recording Episode 2 – A Different Kind of Day Care With The Filo Project. Lily attends a weekly Filo group, hosted by Gloria, which in normal times supports individuals in Devon and Somerset who are socially isolated.
Through the Filo Project, Penny was introduced to Lily’s daughter, Debbie, and wanted to learn more about how she suppo
Season 2 Episode 4 Peter's Story of early onset Alzheimer's
Peter Berry has been living with early onset Alzheimer’s disease for the last 5 years. Along with his wife, Teresa, he talks to Penny about his life.
Previously the owner of a busy timber business, after his diagnosis at the age of 50, he was no longer able to work. He had some very low times but having always been a positive person, he began to focus on ways he could help others and raise awareness.
His passion for cycling led him to undertake several challenges to raise money for young onse
Season 2 Ep 3 Technology, Design And Dementia
This podcast includes content funded by The British Podcast Awards and Wellcome Trust.
Penny wants to know if technology can help people living with dementia stay at home for longer.
She meets Lydia Nicholas from think tank Doteveryone to talk about the vital role tech can play, then takes a tour of a house specially designed for people living with dementia.
She talks to Professor Eef Hogervorst from Loughborough University and David Kelly from BRE to hear more about the innovations they’ve
Season 2 Ep 1 Hello again! How's mum?
We are back for Season 2!
It's been a while but Mum is doing well.
Find out how she is and get an insight into the world of dementia research with Selena Milanovic, from the University of Oxford.
Season 2 Ep 2 A Different Kind Of Day Care With The Filo Project
This podcast includes content funded by The British Podcast Awards and Wellcome Trust.
How important is socialising for a person living with dementia? Penny visits a scheme in Devon which provides what it calls a different kind of day care.
The Filo Project offers a high quality experience for small groups of older people in an intimate home setting.
www.thefiloproject.co.uk
Penny chats to co-founders, Libby Price and Liz Dennis, meets staff and clients, and experiences a Filo day for herse
Episode 8 Pet Therapy at Therapaws
Dogs are such good companions, they can really help improve how we feel mentally and physically. It is not surprising that pet therapy is often seen as a good way to help encourage social interaction for those living with dementia. Penny visits the Therapaws programme in London to find out more about how dogs can promote emotional and physical wellbeing.
Episode 7 Dementia Adventure
Taking a holiday with a person living with dementia can be quite daunting, even if you've always enjoyed going away together. Dementia Adventure offers supported breaks away across the UK and abroad, enabling a person living with dementia to get outdoors and connect with nature. Penny and her mum go to Devon to experience a break by the sea.
Episode 6 Dementia Care With Christina Macdonald
Christina Macdonald, author of Dementia Care: A Guide, tells Penny about her experiences caring for her own mum, who had vascular dementia. Christina is also the founder of Dementia Help, a free online resource designed to support the growing number of dementia carers.
Episode 5 The Mural at Northampton General Hospital
Penny finds out the importance of a 19 metre mural for those with dementia at Northampton General Hospital.
Episode 4 Northampton General Hospital Dementia Care
Penny finds out what happens when someone with dementia needs emergency care or a hospital admission at Northampton General Hospital.
Episode 3 Gill's Story
Gill has early onset dementia and wants to share her story. She takes us to her gardening group with YPWD Berkshire (Younger People With Dementia).
Episode 2 The Alzheimer's Show
Penny's first step to finding out more about dementia - support and expert advice all under one roof.
Episode 1 Meeting Mum
Penny's mum has just been diagnosed with dementia. Here they start to digest the news.
Vote for Discovering Dementia as your Listeners' Choice at the British Podcast Awards: https://www.britishpodcastawards.com/vote