You First: The Disability Rights Florida Podcast
Disability Rights Florida
You First is a bi-weekly interview-based podcast hosted by Keith Casebonne and Maddie Crowley. In each episode, we delve into issues of national and global importance to people with disabilities, such as accessibility, identity, discrimination, rights protections, voting, and much more.
Please note that the opinions of our guests are not necessarily those of Disability Rights Florida.
Encore Episode: By and For People with Disabilities - with Elizabeth Wright and Jennifer Price
Welcome back to You First, where we’re taking a small break from producing new episodes and instead are sharing some older episodes you might have missed. There’s a good chance you missed this episode, our last of four encore episodes, as it didn’t perform as well as most of our other ones. But we think the content is compelling and the guests are engaging, so we're putting it back out there. This episode is called "By and For People with Disabilities," and it was initially released in September
Encore Episode: Paving a Way Disabled in STEM - with Dr. Anita Marshall
Welcome to another encore episode of You First. We’re taking a little break from making new episodes and are re-sharing some past episodes that we feel are worth another listen. This is the third of four encore episodes, initially released in July of 2023, and it’s called "Paving a Way Disabled in STEM." We interviewed Dr. Anita Marshall to learn more about her work to make STEM education more accessible for students with disabilities. Anita created GeoSPACE, the first-ever disability-accessible
Encore Episode: The Intersection of Disability and Reproductive Justice - with Morénike Giwa Onaiwu, Rebecca Cokley, Keith Jones, and Heather Watkins
Today we have another encore episode of You First. This is the second of four encore episodes as we’re taking a bit of a break from producing new episodes. Now this episode, "The Intersection of Disability and Reproductive Justice," is by far our most popular episode – and by a significant margin! But in case you missed it back in August of 2022, count your lucky stars because here it is again. Roe v Wade was overturned not long before we recorded this episode, and we wanted to take a deep dive
Encore Episode: Disability Media Representation - with Beth Haller and Jeff Preston
We’re taking a break from producing new episodes of You First for a bit, so we’ll be re-releasing four older episodes that we feel are worth another listen. We’re starting things off with an episode that is from February 2021 called "Disability Media Representation." We spoke with Beth Haller and Jeff Preston, both of whom are university professors, authors, and experts on disability in the media. We had a great discussion about what’s been done both right and wrong with the portrayal of people
2024 Elections & the Disability Vote - with Michelle Bishop, Monica Wiley, and Jack Rosen
In this episode of You First, hosts Maddie and Keith dive into disability voting rights and the upcoming 2024 election with experts Michelle Bishop, Monica Wiley, and Jack Rosen from the National Disability Rights Network (NDRN). The discussion explores voting accessibility, challenges faced by disabled voters, and new support resources in Florida. Emphasis is placed on the importance of local elections, the power of the disability vote, and the critical need for inclusivity and accessibility fr
Data & Disability - with Matthew Cortland
In this episode of You First, hosts Keith and Maddie interview Matthew Cortland, a Senior Resident Fellow at Data for Progress. Matthew shares insights about their work in public opinion research and advocacy focused on disability issues and social policies. They discuss their personal journey, including challenges with the healthcare system, and explain how data is used to influence policy decisions. The conversation covers topics like the importance of accurate demographic data, the role of pu
Disability & Gender Equity - with Marissa Ditkowsky
In this episode of the You First Podcast, hosts Maddie and Keith talk with disabled activist and attorney Marissa Ditkowsky about the challenges and inequities faced by disabled women in healthcare, employment, and financial freedom. Marissa discusses her role as Disability Economic Justice Council at the National Partnership for Women and Families and shares insights on systemic oppression, the impact of disability on financial stability, and the importance of intersectional advocacy. The episo
Disabled Journalism - with Cara Reedy
In this episode of the You First Podcast, hosts Keith and Maddie interview Cara Reedy, founder and director of the Disabled Journalists Association. Cara shares her journey from political science and theater to journalism, spending ten years at CNN. She discusses the challenges of being disabled in the newsroom, toxic productivity, and the systemic ableism in the journalism industry. Cara then explains how her organization supports disabled journalists by providing resources and advocating for s
Not Dead Yet, Assisted Suicide, and Ongoing Disability Fights - Part 2 with Anita Cameron
Content warning: mentions of suicide, assisted suicide, and medical violence against people with disabilities. In this compelling episode of the You First podcast, hosts Maddie and Keith continue their in-depth interview with Anita Cameron, a prominent activist in the disability rights movement. They explore Anita's role at Not Dead Yet, focusing on their work against assisted suicide and their perspectives on medical discrimination and healthcare rationing affecting the disabled community. Anit
The History of ADAPT, Atlantis Community, and Disability Disobedience - Part 1 with Anita Cameron
On this episode of You First, we talk with the fantastic disability rights activist Anita Cameron. Anita was, and still is, a core reason why we have disability rights today. They were an early adopter of disability rights and justice advocacy and heavily involved and a leader of the organization ADAPT (known throughout the years as American Disabled for Accessible Public Transit or American Disabled for Attendant Programs), the Atlantis community, amongst many other pivotal leadership roles. An
Long Covid & Grilled Cheese
In this unique episode of You First, hosts Maddie and Keith share a personal and insightful discussion about Long Covid and its effects on everyday life. Initially delayed due to Maddie's Long Covid flare-up, this episode takes a candid and casual approach to a serious topic, highlighting symptoms, the politicization of masking, and the ongoing pandemic. The conversation takes an unexpected yet comforting turn into the world of grilled cheese, exploring how this simple meal has served as a go-to
Disability & Artificial Intelligence - with Lawrence Weru, Ariana Aboulafia, and Jennifer Gray
Today's episode features disability and artificial intelligence (AI) experts Larry Weru, Ariana Aboulafia, and Jennifer Gray. AI has been around for years, but things changed when OpenAI released ChatGPT. Since then, the news around AI has increased a lot. AI is more than just a chatbot responder; it can be used in many different ways. We talk with the guests about how AI impacts people with disabilities in their healthcare, education, and employment. The guests provide both intriguing and alarm
#CripTheVote and Voting Advocacy - with Andrew Pulrang and Gregg Beratan
This podcast episode features Andrew Pulrang and Gregg Beratan, prominent figures in disability advocacy and social change. Their pioneering initiative, #CripTheVote, created alongside Alice Wong, has been important in raising awareness about the political power of disabled citizens and sparking meaningful conversations about disability, politics, and activism. Through their efforts, Pulrang and Beratan have used social media to foster a continuous online space that acts as a living archive for
History of the Mad Movement - with Vesper Moore
In this episode of You First, co-hosts Keith and Maddie speak with Indigenous activist and disability rights leader Vesper Moore about the Mad Movement, psychiatric survivorship, and envisioning a future of collective care. Vesper, deeply involved in mental health and disability rights activism, discusses their work in altering perceptions and legislation surrounding mental health both nationally and with international bodies. The conversation delves into the history of psychiatric survivor move
Global Disability Progress - with Rosangela Berman Bieler and Patricia Almeida
In today's episode, we are joined by two international disability advocates, Rosangela Berman Bieler and Patricia Almeida. During our conversation, we discuss the importance and impact of global disability policy and rights work, including their work with the UN and UNICEF. They also discuss how other countries compare to the US regarding disability progress and inclusion, global accessibility initiatives, and the need for continued fighting for disability rights. Relevant Links Disabled Peop
Inclusive Disaster & Emergency Strategies - with Shaylin Sluzalis & Germán Parodi
In this week's episode, co-hosts Keith and Maddie talk with The Partnership for Inclusive Disaster Strategies' Co-Directors Shaylin Sluzalis & Germán Parodi. The Partnership for Inclusive Disaster Strategies (The Partnership) is the only U.S. disability-led, 501(c)(3) organization that prioritizes equity, access, disability rights, disability justice, and full inclusion of people with disabilities, older adults, and people with access and functional needs before, during and after disasters and e
Disability Activism Through Art - with Jen White-Johnson
In this episode of You First, we talk with Jen White-Johnson (she/they), a renowned artist, educator, and disability activist who uses the arts as a medium to champion the life, joy, and experiences of the disabled and neurodivergent community. Jen discusses their journey as someone diagnosed with ADHD later in life, the barriers for disabled Black, Indigenous, and people of color (BIPOC) to getting a diagnosis, and the impact of their son being diagnosed with autism. They talk about the need fo
The ABCs of IEPs - with April Katine and Daysi Ortiz
Two Disability Rights Florida education advocates, April Katine and Daysi Ortiz, join Keith in education planning for students with disabilities. The three discuss the importance of individual education plans (IEPs) and transition planning and offer tips on how parents can more effectively find success throughout the process. Tune in to learn about the various services available under IEP, how to prepare for IEP meetings, the significance of periodic re-evaluations, the importance of maintaining
Disability Inclusive Campaigning - with Neal Carter, Jess Moore Matthews, Sarah Blahovec, and Dom Kelly
In this episode of You First, hosts Keith and Maddie talk with guests Neal Carter, Jess Moore Matthews, Sarah Blahovec, and Dom Kelly about disability-inclusive campaigning, strategies to reach disabled voters, and the significance of accessible elections. Today's episode is not about any specific candidates or voting laws. Instead, we focus on the broader culture of political campaigns, exploring why the disability community often feels excluded and what disabled organizers are doing to challen
Say the Word: Disability - with Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello
In this episode of You First, hosts Keith and Maddie discuss the impact of language on disability rights and inclusion with advocates Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello. The conversation highlights the #SayTheWord disability campaign, personal experiences with disability-related language, government services, marketing, and legislation affecting the disability community. They discuss person-first versus identity-first language and how language influences societal persp
Disability and LGBTQ+ History, Law, and Solidarity - Webinar Audio
In this bonus episode, You First Podcast host Maddie talks with 5 guests about various legal and medical precedents that have led to the division between the disability and LGBTQ+ communities. The history between the LGBTQ+ community and the disability community is often at odds with each other. Historically, LGBTQ+ identities were viewed as mental illnesses, and many within the LGBTQ+ community rightfully rejected this. However, debility and harm from LGBTQ+ oppression and discrimination leadin
Against Technoableism - with Ashley Shew and Mallory Kay Nelson
In this episode, guests Ashley Shew and Mallory Kay Nelson discuss the concept of technoableism, the history of disability and technology, and the importance of involving disabled people when developing new technologies. They highlight the challenges surrounding the definition of disability, the impact of assistive technology on people with disabilities, and the potential problems that may arise during its implementation, such as the pressure for disabled individuals to conform to an ableist sta
Willowbrook and the Future of Disability Rights - with Dr. William Bronston and Marlene Sallo
In this episode, co-hosts Maddie and Keith talk with Dr. William Bronston and Marlene Sallo about Willowbrook State School, its exposé, and its impact on the disability rights movement. The episode starts with our conversation with Dr. Bronston, a doctor who worked at Willowbrook and ultimately was vital in the lawsuit against New York State, ultimately officially closing the institution in 1987. He tells the insidious and harrowing story of abuse, violence, murder, and monetization of disabled
Neurodiversity in the Legal Field - with AJ Link, Jalyn Radziminski, and Haley Moss
You First podcast co-hosts Keith and Maddie are joined by disability activists and legal scholars AJ Link, Jalyn Radziminski, and Haley Moss, who identify as neurodiverse and disabled. They shared their personal stories and insights about their experiences with law school, advocacy, careers, and more. The guests discussed how their unique perspectives benefit and challenge them in their work and highlighted areas of accessibility and inclusion that professionals and educators in the field may no
Building Disabled & LGBTQ+ Community
In this episode of You First, we chat with our friend Beck DeTrempe who is doing some awesome peer led community building in Florida. They founded Basically Wonderful, which is a grassroots organization run by Queer + Disabled folks in Orlando, Florida, USA. Their mission reads: Our hope is to create peer-led spaces for marginalized communities where folks are free to express themselves and build friendships with peers who have similar lived experiences. We are creating intentional spaces for bo
Disability Is Not Scary
With one of their favorite holidays just around the corner, co-hosts Maddie and Keith delve into a serious discussion on using disability as a tool for instilling fear in others, all in the name of Halloween fun. From dressing up in offensive costumes to visiting eerie museums and reopened haunted institutions, the hosts explore how disability history and the disabled community have been intentionally disregarded in favor of a cheap thrill. Content warning: Mentions of violence against people wi
Podcasting with a Disability
On today's episode, we chat with the co-hosts of The Accessible Stall podcast, Emily Ladau and Kyle Khachadurian! These two disabled podcasting stars were some of the first podcasters with disabilities when they got their start in 2016. They are both strong advocates for disability, accessibility, and the power of story-telling. They join Keith and Maddie to discuss why they began podcasting, what accessibility considerations they make when producing a podcast, and much more. About the guests an
Our Toolkit to Tackle Life’s Milestones
As we head back to school in a few weeks, we wanted to highlight our new Transition Toolkit. Transition is a term to describe when youth are moving into a new phase of life. Think about big transitioning moments in your life growing up: going to middle school, trying to get a job, or being able to vote. The Transition Toolkit has timely, helpful information regarding education plans, like IEPs or 504s, and things like self-advocacy, assistive technology, driver's licenses, and much more. It is a
Paving a Way Disabled in STEM
Guest Dr. Anita Marshall joins hosts Keith and Maddie to talk about her work to make STEM more accessible for students with disabilities. As someone who acquired a disability later in life, she realized how ableist and inaccessible higher education really was. Anita created the first-ever disability-accessible planetary geoscience field course and mentoring program, GeoSPACE, and is the Executive Director of The International Association for Geoscience Diversity. We discuss collective disability
Who's Missing in Florida's New Youth Survey
A little over one year ago, Florida decided to stop participating in the Centers for Disease Control and Prevention’s (CDC’s) voluntary Youth Risk Behavior Survey (YRBS). Since 1991, Florida participated in the YRBS. It is widely given to youth across the United States to assess their well-being regarding to mental health, teen dating violence, bullying, drugs, eating and exercise habits, and sexual activity. This survey has been critical lately to monitor the rise in anxiety, depression, and su
Frida: Disability, Sexuality, and Art
In honor of Pride Month, upcoming Disability Pride Month, and the opportunity to always highlight cool disabled people, let’s talk about Frida Kahlo. Many are aware of the legendary artist, Frida Kahlo: her famous artwork, impact on culture, and iconic appearance. But many people do not know that she was a bisexual disabled woman with physical disabilities due to polio and an automobile accident. Her disabilities made a lasting impact on her art, heavily influencing what, who, and how she paint
Disability and Indigenous Identity
Guest Jen Deerinwater joins host Maddie Crowley to talk about the intersection of disability and Indigenous identities. Jen is a disabled Two Spirit Indigenous individual who is an award-winning journalist, organizer, and leader within the disability, Indigenous and environmental justice movements. During the conversation, they discuss paving the way to create a native media organization, combatting ableism and invisibility, and highlighting upcoming opportunities and new resources developing fo
Hurricane Season and Disaster Preparedness
June 1st is the beginning of hurricane season. As Floridians know, it can be a mixed bag as to what storms we’re going to get. But hurricanes impact other states around the country, and it’s important to be prepared and safe. On the show today we’re talking with our coworker, Bryan Russell, who is the Emergency Management Coordinator at Disability Rights Florida. And, while it might be hurricane season, people in Florida and individuals across the country experience severe weather and natural di
Episode 45: Digital Accessibility
With our lives and world becoming more connected and reliant on the internet, what does that mean for people with disabilities? The internet can be a great way for disabled folks to connect, especially as access barriers and safety considerations keep our community apart. But, what if that online space wasn't accessible to the very folks that need it most? We're here to help you change that. We co-authored a blog on this back in November 2022, but we think this information is important to shar
Disabled Marriage and Parenting - Part 2
Welcome to Part 2 of a conversation with Heather Watkins and Dom Evans about marriage inequity, disabled relationships in the media, and disabled parenting! Please check out our show notes from part 1 for more background information and relevant links mentioned in the episode.
Disabled Marriage and Parenting - Part 1
In February, we created a blog post on disability marriage inequality. We knew people would be interested in the topic, but were taken aback by the immense engagement and shock felt by our audience. Because of that, we wanted to create a podcast episode talking with disabled folks about disability marriage inequality, parenting, and more. On the show today we have two fantastic guests, Heather Watkins and Dom Evans. Heather Watkins (she/her) is a disability advocate, author, blogger, mother, an
Honoring Judy Heumann
On March 4th, 2023, the world was shaken by the passing of the legendary disability rights activist and leader Judith (Judy) Heumann. She is considered “The Mother of the Disability Rights Movement” and is frankly a badass. Judy was essential to disability rights advocacy and progress. It is because of her advocacy that our organization can do the work we do today. We are indebted to her and her work, and we will continue her fight for disability rights in her honor. To honor her, we wanted to r
Medicaid Unwinding
Medicaid Unwinding in Florida starts on April 1, 2023. With information coming from various Florida agencies and organizations, it can be hard to get clear information about what is happening with Medicaid eligibility. The Medicaid Unwinding process can feel overwhelming, but we hope our show today will provide you with important clarifying information you need to be ready and prepared for the process. In this bonus episode, we talk with our co-worker from the Public Policy team, Laura Minutell
International Disability Media and Advocacy
In this episode of You First, we chat with Alan Herbert, a Kenyan journalist, social inclusion advocate, and behavior change communications professional. He brings on a wealth of experience in inclusive media practices, leadership, and advocacy. Alan currently serves as a prime-time TV host at Signs TV Kenya and is a founding member and Chief Executive Officer of Black Albinism, Kenya. Alan is also an inclusive communications consultant who has worked with organizations to develop inclusive emp
2023 Disability Policies on Our Watch
Our first episode of the new year focuses on our legislative priorities for 2023. Florida's legislative session starts in March, and Disability Rights Florida has been following the conversations around what bills and topics will be featured. Many of these issues can greatly impact the disability community in Florida. That's why we're here to give you the inside scoop on what we have on our radar this session. We spoke to our friend and coworker, DRF Public Policy Analyst Caitlyn Clibbon. She is
Your Voice, Your Vote: Accessible In-Person Voting
Let's talk about Accessible In-Person Voting in the sixth and final episode of our new series, "Your Voice, Your Vote!" It’s almost Election Day - and you have the right to vote in person with accessible options. On this episode of "Your Voice, Your Vote!" we’re grateful to have Sarah Goldman, the Director of Administration and Youth Initiatives at the Florida Independent Living Council, and Alex Mosca, a Public Information Specialist at the Leon County Supervisor of Elections office. Tune in to
Your Voice, Your Vote: Running for Office with a Disability
Let's talk about Running for Office with a Disability in the fifth episode of our new series, "Your Voice, Your Vote!" On today’s episode, we’re excited to have guests Sarah Blahovec, Olivia Babis, Karolyn Campbell, and Sabrina Cohen. These four individuals have run for office as folks with disabilities, advocated for inclusive campaigning strategies, and educated potential disabled candidates about how to run for office effectively. The conversation illuminates barriers to civic engagement and
Your Voice, Your Vote: Understanding the Disability Vote
Let's talk about Understanding the Disability Vote in the fourth episode of our new series, "Your Voice, Your Vote!" In this two-part episode, we talk about the disability community, their access to voting, what barriers are up against the disability community’s civic involvement, what trends we see in disabled voters, and what efforts are being made to make elections more accessible for all. First, you will hear from guests Lisa Schur and Doug Kruse from Rutgers University who do disability vot
Your Voice, Your Vote: Intersectionality and Voting
Let's talk about Voting and Intersectionality in the third episode of our new series, "Your Voice, Your Vote!" In this episode, we talk to Jazlyn Gallego from Vote Riders about intersectionality and how marginalized voters are impacted in the election process. Jazlyn is Voter Riders’ Florida State Outreach Director and Florida Voter ID Coalition Coordinator. She talks about how inaccessible voting practices impact all voters, and she shares helpful information about Voter ID requirements and ele
Your Voice, Your Vote: Accessible Vote by Mail
Let's talk about Accessible Vote by Mail in the second episode of our new series, "Your Voice, Your Vote!" In this episode, we talk with Doug Hall and Marsha Bukala, two Floridians with disabilities who have fought for and now utilize Accessible Vote by Mail. They discuss the history of accessible elections in Florida, how they advocated for accessible voting options, and what insights they have about casting a ballot as a voter with a disability.
Your Voice, Your Vote: Disability Voting Laws
Let’s talk about disability voting laws in the first episode of our new series: "Your Voice, Your Vote"! In today's episode, we talk with Michelle Bishop, the National Disability Rights Network’s Voter Access and Engagement Manager. She has extensive academic and embodied knowledge about laws protecting disabled voters, voting accessibility, barriers set up against disabled voters, and where the current state of voting is for the disability community.
New Series Trailer: Your Voice, Your Vote!
As we approach the 2022 Elections, we want to focus in on all things disability and voting. The disability community makes up a fourth of the population, making it a very powerful voting block! Even though this is a huge voting group, there are many structural and interpersonal barriers set up against them. These issues disincentive disabled voters from exercising their civil right to vote. Despite these barriers, historically, the disability community has been incredibly resilient and fierce vo
The Intersection of Disability and Reproductive Justice
Since the overturning of Roe v. Wade, we’ve seen huge repercussions for people’s safety, health, access to medical care, and more. And we know that the overruling impacts people differently, depending on who you are. If you have marginalized identities, you experience more barriers to health care and, therefore, more barriers to accessing abortion and other reproductive-related health care. To dive deep into how the overturning affects one marginalized community--the disability community--we in
Investing in the Success of Employees with Disabilities
Today on the podcast we have guest Neil Romano, a member and former chair of the National Council on Disabilities where he is serving his second three-year term. A former Communications Director at the White House, Neil was nominated by President George W. Bush to be Assistant Secretary of Labor for Disability Employment Policy where he developed a series of outreach programs to help Americans and businesses understand the value of people with disabilities in the workplace. He also served as a m
Accessibility Outside the Box: Research
The sixth and final episode of our "Accessibility Outside the Box" series is about Research. We are excited to have Rua Mae Williams on the podcast to talk about accessible research. They are an academic researcher who studies how technology design, computing research practices, and Disability Justice interact. They touch on a variety of concepts like: how to do accessible and inclusive outreach to communities of study, how we can offer other data collection options so people can fully and authe
Accessibility Outside the Box: Video Gaming
The fifth episode of our "Accessibility Outside the Box" series is about Video Gaming. We chat with James Rath, a legally blind film director, accessibility advocate, and speaker. In his accessibility efforts, he provides video game and console accessibility reviews, acts as an accessibility consultant for video game companies, and drives the future of gaming in a positive direction. In this episode, we talk all about accessible gaming, where accessible gaming was "back in the day" with the firs
Accessibility Outside the Box: Recreation
The fourth episode of our "Accessibility Outside the Box" series is about Recreation. Today we have two guests on the podcast to talk about various aspects of recreation, and how we can make recreation more accessible for all, including people with disabilities. First, we talk with Ashley Richmond from Help Us Gather, or HUG for short, about their organization, beach accessibility, and how to make recreational events accessible. Then we chat with Stacy Busch from No Divide KC, an arts and music
Accessibility Outside the Box: Fashion
The third episode of our "Accessibility Outside the Box" series is about Fashion. We’ve all struggled to find clothes that fit well, we feel good in, or are just right for the occasion we are going to. However, these are everyday struggles when you’re an individual with a disability. Our guest for this episode is Kathy D Woods. She is the first African American little person to create a clothing line designed by and for little people. She’s leading the way in accessible fashion and pushing the f
Accessibility Outside the Box: City Planning
The second episode of our "Accessibility Outside the Box" series is about City Planning. We interviewed Nora Libertun, a global leading expert on urban planning and design, sustainability, and social inclusion. Her work revolves around making everything in a city more accessible, including the layout, transportation, and recreation. She spoke about how cities need to be designed for everyone to utilize, especially people with disabilities. Links: Nora's book, "Cities as Spaces for Opportunities
Accessibility Outside the Box: Travel and Vacationing
Welcome to the first episode of "Accessibility Outside the Box!" Today we talk about Travel and Vacationing. We spoke to Olivia Shivas and Rebecca Dubber to learn more about this topic. They host a great podcast called What’s Wrong With You? where they recorded an episode during a trip they took, recounting all the challenges they faced along the way. They shared with us what they learned about accessible travel and vacationing. Links: What's Wrong With You? Podcast
New Series Trailer: Accessibility Outside the Box
We are happy to announce our new six-episode series we call, “Accessibility Outside the Box!” Most of us are aware by now of what it means for something to be accessible: a ramp into a building for a person who uses a wheelchair, or a website that works for people who are blind and use screen reading software. This series is all about some aspects of accessibility you might not be aware of, but regardless often affect the daily activities of many people with disabilities. Without proper accessib
Encore Episode 3: Accessibility in Florida Prisons
We’ll be back in April with new episodes. But until then we’re releasing encore presentations of several early episodes that matter just as much today as they did when they were originally recorded. This month, we bring you our 14th episode, Accessibility in Florida Prisons. This episode was originally released on November 21, 2017, when Disability Rights Florida was suing the Florida Department of Corrections over an enforcement of a settlement agreement signed in summer of that year. That sett
Encore Episode 2: The Right to Recovery
We’ll be back in April with new episodes. But until then we’re releasing encore presentations of several early episodes that matter just as much today as they did when they were originally recorded. This month we bring you “The Right to Recovery.” This episode was originally released on February 21, 2017. Since then, we’ve done two more episodes on related topics: episode 10 on Peer Support and episode 29 on Clubhouses. Links to those are below, but for now please enjoy this encore episode of Yo
Encore Episode 1: Supported Decision-Making
We’ll be back with new episodes in April, so until then we’ll be releasing encore presentations of several early episodes that still ring true today. This month, we present our fifth episode, titled Supported Decision-Making. This episode was originally published on December 15, 2016, and supported decision-making, or SDM for short, is now going strong in Florida and many other parts of the US. Our guest for this episode, Michael Lincoln-McCreight, is currently the co-chair of the SDM4FL Coaliti
Services for Veterans with Disabilities
In this episode, Jordan Kuveke-Guyton, a Veteran’s Affairs Accredited Attorney with Chad Barr Law, and Ann Siegel, the Legal Director at Disability Rights Florida, discuss options available to veterans with disabilities, many of which you might not be aware of. Not only are there benefits and discounts veterans can qualify for, but there are a number of services and rights protections that can provide veterans with a successful transition to civilian life. Links: ProtectingVets.com Find Your St
Always an Advocate
In this episode of You First, we talk to Angela Muir Van Etten. Angela just published her third book, Always an Advocate, which is full of both practical advocacy advice and many interesting stories. There will always be a need for advocates and, Always an Advocate offers hope for those who are skeptical about changing the discriminatory treatment of people with disabilities. Links: Angela's books on Amazon.com Angela's website and blog
Finding and Keeping Quality Employment
October is National Disability Employment Awareness Month. In this episode of the You First podcast, we wanted to bring some awareness to a group right here in Florida that created some amazing resources to help people with disabilities find and keep quality employment. To talk much more about that are my guests: Danielle McGill, the founder of Empower Possibilities and a disability consultant, advocate, and public speaker; and Wendy Vance, an Advocate-Investigator at Disability Rights Florida.
By and For People with Disabilities
In Episode 23 of the You First podcast, we talked about the representation of people with disabilities in the media, how that has evolved over the years, improving in some ways, but more often still faltering with poor and inaccurate portrayals of people with disabilities in popular media. A great point that was brought up was one of the best ways to combat these issues was for people with disabilities to create their own content, to control the narrative, and help to create platforms where thei
Creating Community with Clubhouses
When you hear the word “clubhouse,” what do you think of? For somewhere between 500,000 and 1 million people with mental illness, they think of a clubhouse as a place to gather regularly to reduce isolation, gain important skills and resources, and is an integral part of recovery. My three guests today will tell us more. They are Debra Webb, Executive Director of the Key Clubhouse of South Florida; Amy McClellan, President of the Board of Directors of the Key Clubhouse; and Alexander Lasa, a lon
YouTubers with Disabilities
In this episode of You First, we talk to Annie Segarra, James Rath, and Rikki Poynter. They discuss the accessibility obstacles they encounter, recount the joys and challenges of sharing vulnerable stories on the internet, and share what disability pride means to them. Links: Annie Segarra's YouTube Channel: https://www.youtube.com/user/theannieelainey James Rath's YouTube Channel: https://www.youtube.com/user/jamesrath Rikki Poynter's YouTube Channel: https://www.youtube.com/user/rikkipoynter
2021 Florida Legislative Wrap-Up
In this episode of You First, we talk to Disability Rights Florida's Tony DePalma and Olivia Babis to discuss the 2021 Florida Legislative Session. Olivia and Tony review a number of important bills that were presented to the legislature, challenges we faced related to the pandemic, and what did and did not pass this session. NOTE: at the time of recording this episode, Governor Ron DeSantis had not signed or vetoed some of the items discussed. Visit our 2021 Florida Legislative Outcomes blog po
COVID-19, the ICU, and Mental Health
In this episode of You First, we look at COVID-19 through the lens of mental health. Post-Intensive Care Syndrome (PICS) was identified years before the pandemic, along with great strategies to reduce the chances that someone in intensive care would develop complications related to it. But COVID-19 has changed that, as ICUs became overcrowded and staff overtaxed. Our guest is Dr. Megan Hosey from Johns Hopkins School of Medicine. Megan explains what PICS is, how the pandemic has affected its pre
Eco-Ableism
In this episode of You First, let's talk about saving the planet! We can fight climate change by eliminating all single-use plastics and walking to get where you need to go – that will save us all! But will it? Or does thinking like that make you an eco-ableist by not considering the needs of people with disabilities? Our first guest is Elizabeth Wright, a writer, activist, keynote and TEDx speaker, and an Australian Paralympic Medalist. She is also the founder and editor of Conscious Being, a p
SDM4FL: Supported Decision-Making in 2021
In the fifth episode of the You First podcast, we heard from Michael Lincoln-McCreight about something new in Florida called Supported Decision-Making (SDM). Much has changed with SDM and Mike in the four years since then, and he's back to give us some updates. We also talk to Viviana Bonilla López and Tyler Burns. Viviana is an attorney at Disability Rights Florida who coordinates the SDM project and co-chairs the SDM4FL Coalition with Mike. And Tyler is a client of Viviana who is signing his S
Disability Media Representation
Our guests on this episode of You First are Beth Haller and Jeff Preston, both of whom are university professors, authors, and experts on disability in the media. They discuss what's been done right and wrong with the portrayal of people with disabilities in film and TV, the impact of streaming platforms on the movement, and why Sia's new movie, "Music," is a disaster. Referenced in the episode: Routledge Companion to Disability and Media Representing Disability in an Ableist World: Essays on M
Impact of Weight Stigma on Mental Health
I have experienced weight stigma throughout my life, but had never heard the term or understood exactly how it affected me. After speaking to Shira Collings, I know much more about weight stigma: what it is, where it comes from, and how it can affect mental health. Listen to learn more, and register for our upcoming free webinar on weight stigma. Resources: Food Psych podcast Body Respect book The F*ck-It Diet book/podcast Also, Feedspot added You First to their list of Top 10 Social Security
Clumsy Girl Travels
In this fun episode of You First, we talk to Marika Devin, owner of the Clumsy Girl Travels blog. Marika discusses her experiences traveling with a hidden disability, offers practical travel advice to others, and tells us about the time she ate a lamb's head in Iceland.
COVID-19 Effects on Assistive Technology in Education
The COVID-19 pandemic has deeply impacted assistive technology (AT) access and training, especially for students with disabilities. In this episode of You First, we talk to Ana Nevares of FAAST and Gerry Altamirano of the University of Florida to learn more about the benefits of AT for students with disabilities, how COVID-19 has impacted AT, and what students and parents can do to overcome it.
Barriers to Employment
October is National Disability Employment Awareness Month (NDEAM), and to recognize that, this episode of You First is all about barriers to employment. Disability Rights Florida advocates Wendy Vance, Victor Panoff, Howard Bell, and Allison Klein explore numerous barriers to employment, beginning with school-age issues all the way to challenges in the workplace, and how they can each be overcome.
30th Anniversary of the ADA
In this special episode of You First, we recognize the 30th anniversary of the Americans with Disabilities Act. Disability Rights Florida staff members Barb Page, Juli Pack, Curtis Filaroski, Ann Robinson, Andrea Jenkins, and Olivia Babis discuss the impact the ADA has had on them, how things might be different without the ADA, and what still needs to be accomplished even 30 years later.
2019 Legislative Wrap-Up (Part 2)
In the second part of this episode of You First, we conclude our conversation with Disability Rights Florida's Olivia Babis and Tony DePalma as they discuss the 2019 Florida Legislative Session. Olivia and Tony explore several key bills that were presented to the legislature, the outcome of those bills, and their impact on Floridians with disabilities. For more information about the 2019 Legislative Session, visit www.disabilityrightsflorida.org/legislation.
2019 Legislative Wrap-Up (Part 1)
In this episode of You First, we talk to Disability Rights Florida's Olivia Babis and Tony DePalma to discuss the 2019 Florida Legislative Session. Olivia and Tony explore several key bills that were presented to the legislature, the outcome of those bills, and their impact on Floridians with disabilities. For more information about the 2019 Legislative Session, visit www.disabilityrightsflorida.org/legislation.
Navigating Facility Transition
In this episode of You First, our panel discusses the ins and outs of transitioning from one facility to another. First, we hear from Deborah Linton, Chief Executive Officer of The Arc of Florida, who provides an overview of the process and gives us some helpful resources. Next, Bonnie Carr, who, with her daughter Sara, went through the process of transitioning from one facility to another, tells us her story. Last, Kathy Clinton, who, with her son Tristan, also experienced the process of trans
Extended School Year
In this episode of You First, we talk to Disability Rights Florida staff members Nately Alvarez and Lauren Eversole. Nately and Lauren explain what Extended School Year (ESY) is, who is eligible, and strategies to help parents of children in Special Education acquire appropriate ESY services.
Accessibility in Florida Prisons
In this episode of You First, we talk to David Boyer, Director of Investigations at Disability Rights Florida, and Molly Paris, Assistant Director at Florida Lawyers Assistance. David and Molly discuss how prisoners with disabilities were not receiving the same access to programs and services that other prisoners were receiving, and what Disability Rights Florida did to remedy those oversights.
Service Animals
In this episode of You First, we talk to Barb Page and Lisa Kinser, two Senior Advocates at Disability Rights Florida that provide assistance for clients with service animal issues. Lisa and Barb discuss the different types of assistance a service animal can provide, what the laws are regarding housing and places of business, and taking your service animal on airlines and other forms of public transportation.
Special Education
In this episode of You First, we talk to Selina O'Shannon and Nately Alvarez, two Advocates at Disability Rights Florida who specialize in Special Education cases. Selina and Nately provide a wonderful overview of special education in Florida, explain the differences between IEP Plans and 504 Plans, and offer a wide array of tips and tricks to help make parents' lives a little bit easier.
Special Needs Shelters - Your Life Raft in an Emergency
In this episode of You First, we talk to Judy Silverstein, Regional Special Needs Consultant at the Florida Department of Health, and Carol Stachurski, Program Operations Manager at Disability Rights Florida. Judy and Carol explain how Floridians with disabilities can best prepare for emergencies, including signing up with the Special Needs Registry, how Special Needs Shelters are different from conventional shelters, and more.
Peer Support
In this episode of You First, we talk to Crystal Lilly, Director of Education and Training at Federation of Families of Central Florida, and Cameron Wood, Executive Director of the Peer Support Coalition of Florida. Crystal and Cameron discuss peer support programs, a natural extension of the recovery-oriented systems of care we discussed in Episode 7: The Right to Recovery. They also discuss the roles of Certified Recovery Peer Specialists, how you could become one, and be a part of the peer su
What is the Client Assistance Program?
In this episode of You First, we talk to Janniell Vazquez and Howard Bell of Disability Rights Florida. Janniell and Howard tell us about the Client Assistance Program (CAP), including information about who is eligible and what types of services can be provided. After listening, if you believe you could benefit from CAP, please contact us at 1-800-342-0823 or www.disabilityrightsflorida.org/intake.
Web and Document Accessibility
In this episode of You First, we talk to Mark Miller of Interactive Accessibility. Mark uses anecdotes and analogies to energize our discussion of website and document accessibility, explaining why it is important to make sure your digital storefront is accessible and how you can ensure access to your websites, documents, and presentations for people using assistive technologies such as screen readers.
The Right to Recovery
In this episode of You First, we talk to Dana Foglesong, Manager of Recovery and Resiliency Services at Magellan Complete Care, and Wesley Evans, Statewide Coordinator of Integration and Recovery Services at the Florida Department of Children and Families. Dana and Wesley talk about the Right to Recovery as described by Recovery-Oriented Systems of Care, a modern approach to treatment and recovery from mental illnesses and substance abuse.
ABLE United
This episode of You First focuses on ABLE United, a new savings and investment option for persons with disabilities in Florida. ABLE United Director John Finch tells us what an ABLE account is, how to get one, and how it affects your benefits and income.
Supported Decision-Making
This episode of You First features Mike McCreight, a young adult who was previously placed in a plenary guardianship but is now once again able to make his own decisions, and Mike's attorney, Amanda Heystek, who is Director of Systems Reform at Disability Rights Florida. We talk with Mike about the restrictive situation he was forced into, how Amanda was able to help Mike by replacing the guardianship with a supported decision-making contract, and how Mike’s life has changed since that time.
Voting Experiences
Our guests today include Barb Page, Natalie Alden, and Victor Panoff, Advocate-Investigators at Disability Rights Florida. They each tell us why they feel it is important for persons with disabilities to vote and discuss their past experiences when voting. The guests also give advice to new voters about how to handle any issues they might encounter.
Make a Voting Plan
In this episode, Bill Cowles, the Orange County Supervisor of Elections, explains the benefits of making a plan before going to the polls. From learning about the candidates to coordinating a ride, voters with disabilities should plan for the different tasks required to efficiently cast their ballot. With the election rapidly approaching, make sure you start planning now for how you're going to vote!
Voting Resources
Floridians are entitled to resources and assistance when voting. In this episode, we interview Dana Farmer, PAVA Coordinator at Disability Rights Florida, who discusses the various services and resources available to voters. The information discussed should positively impact listeners’ turnout in the upcoming election by emphasizing the resources available for individuals to help them “access the vote.”
Your Vote is Important!
An in-depth interview with Michelle Bishop, the Protection and Advocacy for Voting Access (PAVA) representative with the National Disability Rights Network (NDRN), that will educate listeners about the importance of voting and general accessibility issues voters may face, as well as legislation and resources available to support voters with disabilities.
Trailer
The disability community is not a monolith. Within the community, there are people of different views, beliefs, and identities. And each individual person with a disability has a story to tell. And that’s why we’re here. Our podcast, You First, by Disability Rights Florida, features first-hand interviews with disabled guests, scholars, and advocates covering a wide variety of disability-related issues. We have episodes on voting access, mental health, ableism in academia, disability and reprodu