EURORDIS, a portmanteau of European Rare Disease, is a non-governmental alliance of organisations representing 860 rare disease patient organisations in 70 countries, and the 30 million people affected by rare diseases throughout Europe. CEO Yann Le Cam in 1997, one of the founders of EURORDIS, who's eldest of three daughters is living with cystic fibrosis.With the upcoming European Commission Conference on Rare Diseases occurring on June 17th coupled with the ongoing inquiry around the OMP regulation, this timely podcast with EURORDIS’ Director of Public Affairs, Simone Boselli, puts the discussions squarely in the context of patient access to needed medicines for rare indications by developing a pan-European value-based evaluation network.This Better Science, Better Health Podcast is made possible with the support of EUCOPE.See omnystudio.com/listener for privacy information.